#NEISVOID

MzAmanita

Mysteryshroomy

#neisvoid #chronicillness Today I feel like having chronic illness/pain/fatigue is like being banished to an island, and my friends from the mainland cannot come visit me on my island, but

Ashley

AngryllamagoERR

I love my fam, they mean well. That being said if they say “oh man, I know exactly how you must be feeling, how do you do this?” When referring

🐌 deep sea cryptid 🐌

swampflora

I just wanna point out that some people have vaginas that don't really get wet no matter how aroused they are due to medical conditions and/or medication side effects. This

ᴀnna ɴaomi

banannaomi

when i got my sinus surgery last fall, there were these electric + inflatable calf links that kept my circulation healthy + comfy in my legs + feet.i want them

Madstick

MadstickMcr

#neisvoid I have just been informed by my GP that our Clinical Commissioning Group has advised no prescription writing for OTC medication. Has anyone else had this? 1/ I pointed

Nadia Buiter #GeenDorHout #SolidairNaarNul

nadia_buiter

#NEISvoid please if you can, share this video widely. Dutch government is proudly admitting that we always had a strategy of pursuing herd immunity through natural infections. Our hospitals are

Hemmeli 🛌👩🏽‍🦽🐈🏳️‍🌈

Hemmeli__

#neisvoid I want to tell you about what GET did to me. Before GET I had medium ME. I was mostly home bound but I could take short walks, take

Z Bolay Buss

buss_patriarchy

#neisvoid waiting to hear from doc but maybe someone here can help. Been disoriented / almost brain shutting down for few days. No matter how much I sleep like a

Brianne's Haunted Soapbox

bennessb

Hi if you're too fatigued to care for yourself and your doctor has suggested that you exercise, reduce your stress, or improve your sleep hygiene instead of suggesting that you

Dr El Spaeth is Extra Spooky

ellenspaeth

Advice requested, #NEISvoid. It takes superhuman strength to get out of bed in the morning. I don't get restful sleep, because POTS/fibro/etc. Would like advice on the being asleep and

sick & tired (they/them)

lollipop_bandit

hey #NEISVoid #MedTwitter specifically #EhlersDanlos #EDS Twitter does anyone have a list of what information to give the hospital if you're having surgery, like in an emergency? I'm thinking like

Monroe

MonroesBodyTalk

If you’re ever wondering why those in the #neisvoid tell you to ALWAYS make doctors do tests on you even if they “think” you don’t need them. I’ve been having

Brianna/Bri || 13 days

bnbthehugger

#NEISvoid so this is something I've had happen before, it's not a constant but it'll last for a certain length of time & then I don't experience it for awhile.

Lena // #BlackLivesMatter // 🏳️‍🌈 ♿️

boisei0

This weekend has been genuinely interesting when it comes to awareness. I previously considered May 2017 as starting point of ME symptoms. It wasn’t, that’s when it worsened. I’ve had

Cancel Ableism

AbleismCancel

Really struggling with my self worth. I feel like I do nothing. Every day is a struggle. It just feels like nonstop suffering. The worst part is, no one knows

GinaMcGalliard 🧜🏻‍♀️🌕🍀

GinaMcGalliard

Alright, I’m just going to announce this: cognitive behavior therapy CBT is NOT an appropriate first-line treatment for poorly understood physical conditions such as #insomnia, #chronicpain, #MECFS, etc. It is