#NEISVOID

Sparrow/Liz (semi-hiatus)

UntoNuggan

If anyone is interested, I thought maybe we could do a thread of your favorite shower access hacksWhether it's hard to shower because of pain, dysautonomia, depression, ADHD, whateverFeel free

EDSWC Secretary (Natasha)

edswc_secretary

Ok so here's something wild imo: My floof baby Misty recently was diagnosed with arthritis in her hips and leg. Her vet told us that she'd have to be on

danni

stfudanni

being chronically ill makes me a “bad friend” & I don’t care anymore. I’m too sick to go anywhere, everything is a project, I need a few days notice to

Emily Krebs🧂

kkrreebbss

It’s #DysautonomiaAwarenessMonth! This condition is about as common as T1 diabetes, MS, and Parkinson’s, but most people (docs included) have no idea what it is. That means it’s tough for

It'sME(Jaime)

exceedhergrasp1

For all my interactions with people with chronic illness, I have never interacted with a chronically ill hypochondriac -- that is, someone who IS sick but invents additional symptoms or

Brianne's Haunted Soapbox

bennessb

It's been a while since I've talked about this unsolicited advice thing, and now seems like as good a time as any.So read on for a quick overview of when

margo, undiagnosed

sicc_bitch

“its all in your head” and “its coming from a problem in your brain” are, hypothetically, describing the same thing.the instinct to respond “its NOT in my head” is so

Tain (She/They)

thechroniccurly

I kind of want to do a thread on something I never experienced before chronic pain, that I call "secondary pain wave" My bad if this is old news to

Overwhelmed MS4 🏳️‍⚧️

ndmedstudent

EDS and pregnancy. Wish the language weren't so gendered, but great article nonetheless. Summary for #MedTwitter to followhttps://twitter.com/hEDStogether/status/1380783292115529729 Pregnant or gestating EDS pts have: "increased r

Monroe

MonroesBodyTalk

Okay something needs to be addressed regarding #NoComradeLeftBehind #NoComradesUnder1k. Many of us involved in this community organization are disabled, neuro divergent, and are living through a giant pandemic that’s killing

Lex

2punk5u

Hey #neisvoid and people with trouble digesting, chewing, swallowing.. what are some soft foods besides soups and smoothies? I can’t eat potato, rice, corn, gluten or dairy but my TMJ

Jessica Bell

jessica5bell

Realized I should disclaim that if I'm hurting emotionally/need support re something I tweet, I'll state that explicitly. Otherwise, assume it's shared out of a desire to bear witness and

Naomi Chainey

GnomesChainey

I'm not going to justify this appalling piece with a link. The woman is literally trying to claim that unexplained comas are psychosomatic with no evidence beyond her opinion, but

Paula Knight ✒️🎨 ♿

Paula_JKnight

Megathread: 1 Trying to unpick reasons why people disengage from those with #chronicillness such as #ME My thoughts below. Taken a couple of months! Feel free to add #neisvoid #pwme

Elly Birchall

ellykaybee

Is my PhD done: NoAm I done with my PhD: YesSubmitted my withdrawal form today!! #PhDidnt #PhDone #MECFS #NEISvoid For those wondering why:I had time off working elsewhere, and

Aaron Muszalski

Aaron_Muszalski

THIS it’s the hollowest form of allyship, and the ableist version of “I don’t see color”without first acknowledging *what we’re struggling against* you can’t begin to understand it, let alone