Brianne's Haunted Soapbox, Discover and Read the Best of Twitter Threads by @bennessb

Brianne's Haunted Soapbox

bennessb

If you're chronically ill and you do freelance or contract work, how do you structure communication and scheduling with clients & subcontractors to be as unstressful as possible for your

No matter who they are or how terrible they may be, nobody *deserves* to get sick.Please don't forget that. Like there's so many ways to talk about hypocrisy and malice

If hydration is part of your dysautonomia management strategy, how much water do you need to drink to see an improvement in your symptoms? I've never really tracked but I

Sometimes I feel like we need to talk more about medical trauma and less about internalized ableism.Like we definitely need to talk about internalized ableism, but it doesn't develop in

Okay so folx tag me in lots of really great questions and insights about chronic illness that I really want everyone to see.And also sometimes I fall behind/declare bankruptcy on

Okay so let's make a symptom glossary.Each tweet in this thread will be for discussing a different symptom family, which I know will get unwieldy.Reply to this tweet with symptoms

It's been a while since we did a mystery symptom thread, so let's go.If you have a weird body experience that you're trying to find a name for, describe it

A reason this is so cool is that in a lot of retrofit situations it's not possible to build a ramp that is up to code.Depending on other design features,

Look, I think we can all agree that diagnostic categories are useful constructs that are often divorced from biological realities. The general public grossly underestimates how many sick people are

I would actually love to have a sincere conversation about this because I think about it a lot.https://twitter.com/TitaniaMcGrath/status/1293556090895032322 Like, this thread is satirical, and it's taking direct aim at people

Hi if you're too fatigued to care for yourself and your doctor has suggested that you exercise, reduce your stress, or improve your sleep hygiene instead of suggesting that you

Is there a common term for... patients' institutional literacy within healthcare?Like: knowing how referrals work, what specialists handle what, just knowing what to expect and how you're "supposed to" engage