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Carole Bruce
CaroleBruce17
I haven’t digested this yet but promising headline. UK to launch world's largest genetic study into chronic fatigue syndromehttps://www.theguardian.com/society/2020/jun/23/uk-to-launch-genetic-study-chronic-fatigue-syndrome-cfs I’m
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Paula Knight ✒️🎨 ♿
Paula_JKnight
Megathread: 1 Trying to unpick reasons why people disengage from those with #chronicillness such as #ME My thoughts below. Taken a couple of months! Feel free to add #neisvoid #pwme
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Nora “Real Women Flatten Curves” Helfand
nhelfand
Hello, friends. I rarely make direct requests #onhere, so if I do you know it’s important. THREAD: 1/ I met Nevra Lizéta “Liz” Ahmet @nlizaki of Karachi, Pakistan in August
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Jennifer Brea🦒
jenbrea
Dear medical profession: please get your act together on this. It’s been a few hundred years. You’ve had more than enough time.@AmerMedicalAssn needs to speak out against this behavior, for
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Jennifer Brea🦒
jenbrea
Petra Klinge’s talk on tethered cord syndrome blew my mind. It‘s given me a deeper understanding of how tethered cord syndrome might play a fundamental role in the patholophysiology and
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Michiel Tack
MTackCVS
1) On March 17 there was ME/CFS advocacy call at the NIH. The audio recording and transcript have been made available here: https://www.nih.gov/research-training/medical-research-initiatives/mecfs/nih-me/cfs-advocacy-call-march-17-2020I thought it wa
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Elly Birchall
ellykaybee
Is my PhD done: NoAm I done with my PhD: YesSubmitted my withdrawal form today!! #PhDidnt #PhDone #MECFS #NEISvoid For those wondering why:I had time off working elsewhere, and
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Jennifer Brea🦒
jenbrea
This is pretty unconscionable. @OxfordHealthNHS is recommending yoga, dancing, and cognitive behavioral therapy for post-#COVID19 patients who continue to have symptoms, when we don’t even understand #COVID19 let alone the
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Amy Proal, PhD
microbeminded2
This study found that Epstein Barr #Virus (EBV) IgM antibody seropositive #COVID-19 patients had a 3.09-fold increased risk of fever compared to EBV seronegative patients. Inflammatory markers like C-reactive protein
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KatlaT.CarersForCovidTest&PPE
KatlaToans
It's been one of those days. Scared by ongoing breathlessness after #Covid_19 I called #nhs111 They were fantastic. Within 2 hours 3 Nurses and 1 Doctor phoned. Each assessed my
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Jennifer Brea🦒
jenbrea
I’ve written a lot about post-infectious craniocervical instability—what I believe to have been the cause of my ME symptoms––as a kind of Grisel’s syndrome (hypothetically speaking). This paper has a
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Jennifer Brea🦒
jenbrea
Please stop telling young people they should avoid #COVIDー19 infection to protect the old. Tell them to protect themselves.Long-term symptoms 6+ mo post-infection:EBV: 11%Q fever: 11%Ross River Virus: 11%West Nile
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LongCOVID in Academia
longcovacademia
From an anonymous PhD student living with #LongCovid: "Long Covid is absolutely terrifying and completely traumatising. Not knowing what was going on with my body for months on end was
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Sabeeha Malek
SabeehaMalek
Excited to share my new paper with @ActinDomain! We are proposing an updated definition of #EDS/#HSD, and explain how they could all be disorders of membrane-bound collagen. We explain the
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Athena Akrami
AthenaAkrami
Omicron wave of mass infection showing its impact. Too many friends & colleagues reaching out for advice on #LongCovid. Heartbreaking. A on Rest & Pace. Biggest advice: don't repeat the
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Prof. Akiko Iwasaki
VirusesImmunity
After many months of planning and hard work by so many (incl. @hmkyale @Dianaberrent @wade_schulz @CharleszYaleMed @Aaronmring @DaisySMassey @JeffGehlhausen), today, we are launching our research study to understand how vaccination
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