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Dr Mark Guthridge
Dr_M_Guthridge
1/ ThreadMyalgic Encephalomyelitis/Chronic Fatigue Syndrome #MECFSIs it really that bad?Trigger warnings: The studies below paint a very bleak picture#MyalgicE #SickNotWeak #pwME #MyalgicEncephalomyelitis #ChronicIllness #MedEd #MedTwitter #SickNotWe
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Dr Mark Guthridge
Dr_M_Guthridge
1/ The problem with Myalgic Encephalomyeltis/Chronic Fatigue Syndrome #MECFS is that it seems so ridiculous that exercise could actually make patients worseHow can exercise be so bad for #pwME but
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Jennifer Brea🦒
jenbrea
Acetylcholine receptor autoantibodies have been found in subsets of #MECFS and #POTS patients. This can impair autonomic nervous system function and mast cell regulation. What I did not know is
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#CountLongCovid Angie is 26wks post covid onset.
angie_roo2
Not that we were called that, I think we were calling it long-tail Covid. We were scared, we were acutely unwell, nobody knew what was going on. I will always
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It'sME(Jaime)
exceedhergrasp1
We had the space to do the research on viral infection transitioning to chronic, neurological disease before #COVID19. When we've cleared the acute outbreaks, there will be millions still sick,
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James David Chapman
ahelluvabird
As an M.E patients of 35yrs and well-known patient advocate I worked for years and years supporting and representing #pwme and looking for better treatment.But just for me; I wanted
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It'sME(Jaime)
exceedhergrasp1
We're asking #pwME (myalgic encephalomyelitis/chronic fatigue syndrome) to share their personal stories this #MillionsMissing. Here is mine. (Long THREAD) When I was in later childhood, my mom caught mono in
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Thane Black
thane_black
You might think that the standard of evidence for justifying the forcing of treatment upon a patient would be higher than that where a patient is permitted to refuse treatment.
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Dr Claire Taylor
drclairetaylor
1/ 11 Covid is a vascular disease . We need to stop thinking of it primarily as a lung disease. I hear lung Doctors says ‘we don’t see much
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Jennifer Brea🦒
jenbrea
The “OMG, #COVID19 can cause long-term illness, possibly long-term disability, who knew such a horrible thing was possible?” articles stir in me so many mixed emotions. I feel sorry for
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Emma Nock
LibertyFarmEmma
The rhetoric around furloughed workers is so radically different from that around disabled people. Imagine if the chancellor said 'noone wants to be on ESA, it's not their fault businesses
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Christopher
Spartan36Chris
1/5-The MECFS community needs to reach out to the renown virologists who have spoken about their prolonged battles with COVID-19. Professor Paul Garner is . So too are Dr. Piot
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Naomi Chainey
GnomesChainey
Just want to reflect a bit on the proposed #NDIS changes due to take effect this year.I was on the verge of putting together an application when all of this
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Paul O'Connell
PaulEOC
ME/CFS IN CHILDREN - Our daughter (a thread)As some of you may know, our wonderful 8 year old daughter Hayley was diagnosed with ME (Myalgic Encephalomyelitis) just a few weeks
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Marissa 至佳 Cummings
mcc_cummings
Over the past year, I have been doing a research project on #digital #design for #health #storytelling, so I wanted to put together a short thread on what I learned.
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Dr Mark Guthridge
Dr_M_Guthridge
18 myths & misconceptions of Post-Exertional Malaise #PEM in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome #MECFS#PEM (aka PENE, "flare" or “crash”) is seriously debilitating symptom caused by exercise#SickNotWeak #Si
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