Toggle navigation
TWText.com
TWText.com
faq
Contact US
Follow US
#MEcfs
Chandra Pasma
ChandraPasma
I’m concerned about the growing tendency in some circles to equate #LongCovid with #MEcfs. I think this is bad for both #Longhaulers and ppl living with ME/CFS. A thread.
Read more
Jennie Spotila
jspotila
Unfortunately in some ways it IS competition. THREAD (1/10)https://twitter.com/dr2nisreenalwan/status/1325515300595507201 The public has a limited attention span. Despite events like @unrestfilm and the National Academy of Med report, the p
Read more
Jennifer Brea🦒
jenbrea
Great rundown of the weird world me and my team @MEActNet have been living in the last three weeks as we tried to assess what threat this disinformation campaign posed
Read more
Amy Proal, PhD
microbeminded2
I see tweets suggesting that some #COVID-19 patients might develop ME/CFS-like symptoms, and that’s reasonable. But if we want the broader research community to make that potential connection then we
Read more
Dr Mark Guthridge
Dr_M_Guthridge
Thread:12 reasons that doctors disbelieve patients with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome #MECFS1. Doctors tended to see #pwME as having “certain personality traits"#SickNotWeak #MedEd #MedicalTwitter https://www.bm
Read more
tommy
tommyinboots
what you can call it:- M.E.- myalgic encephalomyelitis- MECFS- myalgic encephalomyelitis / chronic fatigue syndromewhat you shouldn't call it, though insurance companies still do:- chronic fatigue syndromewhat you MUST NOT
Read more
Kerryn Groves 💙
monkeykezza
No idea how to fit all these in, so will share one note under each reply. 18 years today I got ill & I always feel the need to digest
Read more
Themos Kalafatis
lifeanalytics
(1/4) #MECFS is a multi-systemic disease where we are trying to put the pieces of a huge puzzle together. In the Network Analysis shown below Lysine plays a central role.
Read more
Dr Mark Guthridge
Dr_M_Guthridge
Thread:The 10 publications below provide scientific evidence that patients with #MECFS have #brain abnormalities in #neuroinflammation, #metabolism, #neurological connections and blood perfusion#pwME suffer from #chronicillness#pwME are #Si
Read more
Carole Bruce
CaroleBruce17
#ME #MECFS #pwmeHow long have you been ill?Weeks, months, years, decades?#LongME #LongMECFS #LongMyalgicE I keep having to stop reading these and wipe the tears from my glasses. Thank you for
Read more
GinaMcGalliard 🧜🏻♀️🌕🍀
GinaMcGalliard
Alright, I’m just going to announce this: cognitive behavior therapy CBT is NOT an appropriate first-line treatment for poorly understood physical conditions such as #insomnia, #chronicpain, #MECFS, etc. It is
Read more
It's Not All About ME
Claire_Myfanwy
Advice pls:I have a carer once a day due to #severeME and was early implementing strict #COVID19 hygiene as I'm high risk. So far carers have mainly been great, cautious,
Read more
Bea is Chronically Persisting
Be_Kinderr
Interesting article on the ways lack of oxygen to the brain (here caused by sleep apnea) damages the brain. #pplwME #MECFS shown to hypoxia via poor brain blood flow. I
Read more
Dan Wyke
Dan_Wyke
1/ At least 250,000 people with chronic illnesses like #MECFS, #Fibromyalgia, #POTS and #EhlersDanlosSyndrome are currently denied thorough investigation and effective health care in the UK. 2/ This number has
Read more
becky
pink_lotus1
#MEawareness #pwme #MEcfsI am having a wobble. Just realised that it will be exactly ten years on Monday since I first became ill. I was a teacher, & I loved
Read more
Lucy Goodwill
lucygoodwill
People who see please offer me a seat/disability badges and ignore them... know that we see you and it’s not ok (aka everyone on public transport this morning) #pwme #fibromyalgia
Read more
‹
1
2
3
4
5
›