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It's been one of those days. Scared by ongoing breathlessness after #Covid_19 I called #nhs111 They were fantastic. Within 2 hours 3 Nurses and 1 Doctor phoned. Each assessed my symptoms, took a history and EVERY ONE of them called #MECFS a neurological disorder !! Awesome work.
#COVID19 the upshot is this. IF it's going to Covid usually takes a downward turn at about 8 days. They look for temperature, pain, if you're coughing blood or mucus, whether your symptoms interrupt you carrying out normal household tasks. ie so breathless you can't talk or walk
They were very good. The nurses called me back to tell me what was going on and check in on me while I waited for the Doctor. They were crystal clear that if I got worse, I should call them back immediately. In turn I was honest, didn't exaggerate and asked them if I should worry
One Nurse was so reassuring. She said she feels hyper anxious and we talked about stepping away from the News and switching off from it all to reduce panicky thoughts. Very human, like talking to a friend. So it made it easier to focus on and say what symptoms I did / do have.
My symptoms are: no temperature or pain. I still can eat and drink. I can get up and walk round. The problem is I'm having periods of breathlessness, like clouds in my lungs, a gooey, clogged up feeling comes and goes. When it's here it's really hard to feel 02 is going in.
Last night I had to open a window, like someone thirsty looking for water to drink. That's when I got scared. They said as it's over 3 weeks since the first dry cough, it's unlikely to still be Covid maybe antibiotics would help. Without a test they can't be certain though. 
I've got the antibiotics and started taking them tonight. The upshot is this. 111 are hammered right now, 1st thing this morning the queue was almost an hour long. I rang off and rang back. Persist if you are worried, don't be put off. Even they say if you cannot breathe dial 999
Without a test, a clinical diagnosis of Covid-19 is all that's on offer. I.e. they decide from your symptoms. They don't have access to your medical records so be ready to answer questions. Be truthful and clear and exact about what's going on and for how long. If it's bad - 999
I feel better for talking it through with the best people who really know their stuff. They gave me info. based on what they are learning and what's happening too, both general and specific. Tonight I don't have the gooey feeling and can breathe alright. Phone 111 if you need to!
Oh and one last thing. One nurse asked me if I got the government letter. I said "No." Because CFS/ME isn't considered high risk. There was a pause at the end of the line and she said, "neurological disorders have to be considered." No fight over recognition for it at all. 
