#Hypermobile

I have a #hypermobile #hEDS #EDS #DisabledTwitter question!I don’t think I get subluxations but had an odd moment the other day.My right ear was sore (I had been wearing headphones
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Some 2020 research on MCAS, hEDS, POTS. It’s going to prove controversial. ‘We conducted an extensive review of the literature using two different search strategies. All three clinical entities are
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I think the term *Hypermobile* Ehlers-Danlos Syndrome is entirely inadequate & superficial & leading to widespread misunderstanding & mistreatment of patients. It paints a picture of a benign condition—someone who’s
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i think it's an autism/adhd thing for me but i'm finding out i actually fit the bill for a lot of conditions i thought i didn't have previously because they
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EDS-ers be online like:"WHEN I PICK SOMETHING UP, MY WHOLE WRIST, ELBOW, AND SHOULDER POPS REALLY LOUD, SHIFTS DOWNWARDS, AND HURTS REALLY BAD FOR DAYS. IS THIS NORMAL?" MCAD-ers online
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A conflicting access need is when two or more disabled people have needs that it's hard to accommodate simultaneously in the same space (e.g., a service dog handler + severe
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SAKUSA KIYOOMI WORKS SO HARD!!!!!!!!!!!!!!!!!! SAKUSA KIYOOMI WORKS SO FUCKING HARD HERE'S A THREAD ABOUT WHY I SO FIRMLY BELIEVE THIS okay so to start I AM NO DOCTOR i
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Sure 1.) I skipped a grade 2.) Because of skipping a grade I graduated and moved out at 17 3.) My elbows are hypermobile 4.) I took piano lessons for
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I want to start a mega thread exploring all the ways to stim. Show me how you stim with the hashtag #WeStimLikeI'll try to post several of my own in
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For #AutismAcceptance I’m collecting some clips of me as a child.I was undiagnosed but I think it’s interesting to look back on how I behaved.First up, nearly-3-year-old me at
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Today is the 6-year anniversary of the start of my spontaneous spinal CSF leak. It resulted in me being bedridden/housebound for 3 months. It also led to the realisation that
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on the note of other womxn talking about reproductive health, allow me to continue the conversation, as other uterus havers are yet again in danger of losing our autonomy tl;dr:
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This is what someone with a #invisibledisability looks like. A thread for the end of #InvisibleDisabilitiesWeek Giving a visual perspective to #InvisibleDisabilities and #InvisibleIllness. If you are disabled feel free
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A thread on pain and testosterone that I've been wanting to write since the middle of the night From 1993 to 2020, I've had painChronic painSome days are worse than
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IT’S GO TIME!! THESE MAMAS NEED THIS MONEY!! They have been fighting for care for themselves and their kids all alone, until now. Let's show our most vulnerable Hyp+ community
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I have a lot of posts critiquing doctors. So, I wanted to make a thread highlighting a great experience I had with a doctor a couple years ago. This is
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