#Dysautonomia

Emily Krebs🧂

It’s #DysautonomiaAwarenessMonth! This condition is about as common as T1 diabetes, MS, and Parkinson’s, but most people (docs included) have no idea what it is. That means it’s tough for

#NewProfilePic Hi. This thread will be long but I feel it’s important to talk about. Last year I got diagnosed with something called POTS, a subset of dysautonomia. When I

Sho Mayen ♿️

Oh, fuck, the irony. Life is like too real and too strange. Ok, where to begin? The beginning, I suppose…1/ In 2014, my step-dad (who basically raised me as his

Brianne's Haunted Soapbox

I don't want to be a downer because I absolutely do want more & better medical research & care, but cure-related messaging really doesn't resonate with me for a whole

Brianne's Haunted Soapbox

It's been a while since we did a mystery symptom thread, so let's go.If you have a weird body experience that you're trying to find a name for, describe it

Tiny Spooky Emo (חנה) 🦓📸

HufflepunkZebra

This is what someone with a #invisibledisability looks like. A thread for the end of #InvisibleDisabilitiesWeek Giving a visual perspective to #InvisibleDisabilities and #InvisibleIllness. If you are disabled feel free

1/18 Today is the beginning of #Dysautonomia awareness month, so I guess now would be a good time to explain why I live in a horizontal world... please don’t scroll

Jennifer Brea🦒

Just read a story about a woman who had a stroke near her brainstem and almost died. She did not fully recover and lives with dysautonomia, vision problems, and partial

Amber JUSTICE FOR BREONNA TAYLOR

chromcatography

Coming out with a chronic illness/disability at work is a really scary and vulnerable thing, and I don’t know if I’m glad I did it yet. It also sucks that

There have been some really thoughtful comments since we shared our first #longCOVID rehabilitation paper on here and I wanted to take some time to transparently share 5 points about

Hi, everyone! I’ve got some new followers, and I’m sure more are to come. So I’ve finally gotten around to this about me thread so you can be a bit

Meghan O'Rourke

1/ Yesterday, I published a piece in @theatlantic about the crisis of #longCOVID and the doctors at Mount Sinai who are urgently trying to help patients living with it:https://www.theatlantic.com/magazine/archive/2021/04/unlocking-the-myste

Brianne's Haunted Soapbox

If hydration is part of your dysautonomia management strategy, how much water do you need to drink to see an improvement in your symptoms? I've never really tracked but I

Angry Cardiologist

Well, I just read the COVID piece in @TheAtlantic by @dcopaken so you don’t have to. As soon as I am able to unroll my eyes back to their normal

Sparrow/Liz (semi-hiatus)

If anyone is interested, I thought maybe we could do a thread of your favorite shower access hacksWhether it's hard to shower because of pain, dysautonomia, depression, ADHD, whateverFeel free

I’m concerned about the growing tendency in some circles to equate #LongCovid with #MEcfs. I think this is bad for both #Longhaulers and ppl living with ME/CFS. A thread.