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Coming out with a chronic illness/disability at work is a really scary and vulnerable thing, and I don’t know if I’m glad I did it yet.
It also sucks that my condition is so “rare” (underdiagnosed) and misunderstood.
When I tell people about my Ehlers-Danlos Syndrome, they frequently say “Oh, they used to call that double-jointed.”
It’s more than that!
When I tell people about my Ehlers-Danlos Syndrome, they frequently say “Oh, they used to call that double-jointed.”
It’s more than that!
Part of my EDS is dysautonomia (yet time be determined). I feel like I have the cold sweats of a fever every. single. morning.
It’s so exhausting.
It’s so exhausting.
And the joint thing isn’t easy either.
It’s not great seeing how easily my fingers hyperextend and realizing that, someday, my abilities as a chemist will be compromised by early onset arthritis. It’s actually quite heartbreaking.
It’s not great seeing how easily my fingers hyperextend and realizing that, someday, my abilities as a chemist will be compromised by early onset arthritis. It’s actually quite heartbreaking.
I love being a chemist. It’s been my dream since high school, and I’ve dreamt of being a scientist since childhood.
Realizing that might not be a forever thing because of something innate to my body that I can’t control. Oof. It’s a lot to process.
Realizing that might not be a forever thing because of something innate to my body that I can’t control. Oof. It’s a lot to process.
I don’t really have a point to this thread. I’m just processing out loud.
