Toggle navigation
TWText.com
TWText.com
faq
Contact US
Follow US
#Neisvoid
hedwyg (Heather R)
hedwyg
Hey #neisvoid peeps -- we talk about how difficult it can be to get help or support, especially in the face of "Let me know how I can help."So let's
Read more
Brianne's Haunted Soapbox
bennessb
Okay so folx tag me in lots of really great questions and insights about chronic illness that I really want everyone to see.And also sometimes I fall behind/declare bankruptcy on
Read more
Jessica Bell
jessica5bell
New Specialist Preparations. 1. Begin assembling materials far enough in advance that I can tolerate the daily toll of extra cognitive and physical exertion combined with the escalating negative effects
Read more
Leah McElrath 🏳️🌈
leahmcelrath
I just chose to leave a DM group filled with physicians because they had gone off on a tangent talking about patients presenting with pain whom they believed were med-seeking
Read more
julia ferraioli
juliaferraioli
I've been thinking *a lot* about how people with #ChronicIllness are not considered reliable narrators of their own experiences. #neisvoid It's why so many of us seek concrete diagnoses of
Read more
Beth Morton
beth_morton
If you have fatigue and you exercise (or just *do* things), how do or can you tell the difference between being out of shape "tired" (which might be okay) and
Read more
Nora “Real Women Flatten Curves” Helfand
nhelfand
If there is one thing I want everyone on earth to understand before I die, it is that physiological illnesses can cause psychiatric symptoms that are not necessarily caused by
Read more
eve
eve_moriarty
anyone else on #NEISvoid #chronicillness twitter been told not to nap by their doctor? i mentioned that i was concerned as i'm getting my normal amount of sleep but that
Read more
Naomi Chainey
GnomesChainey
1) This idea of "secondary gains" is coming up a lot this week in relation to #LongCovid. I have a few thoughts on it. #NEISVoid #MECFS #DisabilityPride https://twitter.com/TomKindlon/status/1317884385094414336 2) You
Read more
🌻 Susannah 🌻 ♿ 🏳️🌈
SweetInTheGale
Poll thread.If you're in the UK or Ireland & housebound/vulnerable to covid, (regardless of whether the gov decided you were!) & thus unable to safely go to a supermarket all
Read more
defective darling 🏳️🌈♿️🏳️⚧️
dissociacrip
i think it's an autism/adhd thing for me but i'm finding out i actually fit the bill for a lot of conditions i thought i didn't have previously because they
Read more
Ody_O
OdyO11
Hello fellow chronically ill folks with limited energy.One thing that is really difficult for me is how few opportunities I have to do something nice for the people in my
Read more
Do no harm, take no shit (Casey)
sithrenity
Carpal instability...So far, confirmed carpal tunnel syndrome, DeQuervain’s, ulnar nerve impingement (likely from elbow though), & pain on the pinky side of my wrist...Anyone have any advice #neisvoid maybe? @monika_dryburgh
Read more
teona | chaotic cripple ♿👩🏾🦼
tee_spoonie
#neisvoid if you or anyone you know recovered from covid / semi-recovered (i.e #LongCovid ) if you have any advice I can give my dad and stepmom who caught it,
Read more
Emily Krebs🧂
kkrreebbss
Thread on COVID, social support, and #accessibility:My only sibling is getting married next week. No masks. 100+ guests. Folks traveling 1,600 miles to attend.I’m on immune suppressants.#NEISvoid #DisabilityTwitter I’ve been
Read more
Sarah K Stricker, MSHC
ksarahsarah2
So I've been waiting for my insurance to approve IVIG for six months now. They denied it the first time and then again even once we got more diagnostic evidence.#chronicillness
Read more
‹
1
2
3
4
›