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#Longcovid
#DigitalHealth Futurist 👨💻
ManeeshJuneja
Day 137 of #longcovid - most of the day has been wiped out again due to extreme fatigue, drifted in and out of sleep all day. This is the 8th
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Dan Wyke
Dan_Wyke
Programme on #LongCovid on @BBCRadio4 this morning. Treatment unlikely to involve a prescription for medication; instead work with a physiotherapist and psychologist. Patients better start getting used to self-management and
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Chimére L. Smith
chiluvs1
Is anyone else afraid of the lack of black women voices in #longcovid conversations? If anyone knows how challenging it is to be heard by doctors, it’s us. From fibroids
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Putrino Lab
PutrinoLab
#science is broken - a thread: since the pandemic began we have been at the forefront of advocacy and science for #LongCovid/#PASC. In Nov 2020, we submitted a novel dataset
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🔎Pauline Oustric
Food_reward
[thread] #LongCovid meeting by @BMJ_latest with a panel of researchers and doctors What is #LongCovid?How to diagnose it ?What can we do ?A new disease that people seems not to
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Hannah Davis 🦈
ahandvanish
Postviral vagal neuropathy (meaning a damaged vagus nerve) is found in some #LongCovid patients. This can result in things like vocal cord dysfunction & can be the reason some patients
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Ben H
benh_mecfs
#MEAwarenesshourThe patients, carers and scientists in the #MECFS community are some of the smartest, most empathetic people I've ever met. If you're suffering #LongCovid or are #covid1in20 ,we are here
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Dr Birgit Clark
BirgitC
My Sunday morning ... I think it's day 167 of #longcovid. #longcovid.I have only started taking my temp again after reading my son's school's "safe return to school" guidance.
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Putrino Lab
PutrinoLab
There have been some really thoughtful comments since we shared our first #longCOVID rehabilitation paper on here and I wanted to take some time to transparently share 5 points about
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Hugh Lewis
ProfHughLewis
Without wishing to subtweet anyone, I am seeing much discussion of #LongCovid & similarities (or not) with #MECFS. I can only speak of my lived experience with the latter &
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Dan Wyke
Dan_Wyke
1/ At least 250,000 people with chronic illnesses like #MECFS, #Fibromyalgia, #POTS and #EhlersDanlosSyndrome are currently denied thorough investigation and effective health care in the UK. 2/ This number has
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Hemmeli 🛌👩🏽🦽🐈🏳️🌈
Hemmeli__
#neisvoid I want to tell you about what GET did to me. Before GET I had medium ME. I was mostly home bound but I could take short walks, take
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Tom Kindlon
TomKindlon
[Thread]Doctors with #longCOVIDI think many with #MyalgicEncephalomyelitis /#ChronicFatigueSyndrome may find the changed attitudes of interest. https://www.bma.org.uk/news-and-opinion/doctors-with-long-covid#longhaulers #longCOVID #PostCovi
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LongCOVID in Academia
longcovacademia
From an anonymous PhD student living with #LongCovid: "Long Covid is absolutely terrifying and completely traumatising. Not knowing what was going on with my body for months on end was
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Naomi Chainey
GnomesChainey
1) This idea of "secondary gains" is coming up a lot this week in relation to #LongCovid. I have a few thoughts on it. #NEISVoid #MECFS #DisabilityPride https://twitter.com/TomKindlon/status/1317884385094414336 2) You
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Ziyad Al-Aly, MD
zalaly
Happy to share the latest paper from our team in @natureA comprehensive characterization of post acute sequelae of COVID-19#longcovid #PASChttps://www.nature.com/articles/s41586-021-03553-9@VAResearch @vahsrd @WUSTL @WUSTLpubhealth @WUSTLme
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