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[thread] #LongCovid meeting by @BMJ_latest with a panel of researchers and doctors
What is #LongCovid?
How to diagnose it ?
What can we do ?
A new disease that people seems not to recover from and we need to Accept uncertainty and be honest with patients
#apresj20
![[thread] #LongCovid meeting by @BMJ_latest with a panel of researchers and doctors What is #LongCovid?How to diagnose it ?What can we do ?A new disease that people seems not to recover from and we need to Accept uncertainty and be honest with patients #apresj20](https://pbs.twimg.com/media/EhAIxdaWkAATVT8.jpg "[thread] #LongCovid meeting by @BMJ_latest with a panel of researchers and doctors What is #LongCovid?How to diagnose it ?What can we do ?A new disease that people seems not to recover from and we need to Accept uncertainty and be honest with patients #apresj20")
What is #LongCovid?
How to diagnose it ?
What can we do ?
A new disease that people seems not to recover from and we need to Accept uncertainty and be honest with patients
#apresj20
2- @trishgreenhalgh is arguing that #LongCovid should be defined independently of tests as they were not available at the start & don’t translate symptoms
we need to handle this uncertainty of longcovid by sharing honestly with the patient that lots of things are still unknown
we need to handle this uncertainty of longcovid by sharing honestly with the patient that lots of things are still unknown
3- @timspector - 4 millions people downloaded the covid app
- 10% of people who had covid have symptoms for more than a month
- 60 000 people with symptoms lasting over 3 months in UK
- 10% of people who had covid have symptoms for more than a month
- 60 000 people with symptoms lasting over 3 months in UK
4- @PaulGarnerWoof said it’s a difficult and bizarre disease and dealing with it is a full time job!
We need guidelines and need to be realistic with time of convalescence.
We look well and people don’t understand we are still ill for that long
We need guidelines and need to be realistic with time of convalescence.
We look well and people don’t understand we are still ill for that long
5- @Dr2NisreenAlwan #LongCovid can be defined by the fact of NOT recovering after months with different symptômes and relapses. It’s a constant circle of disappointment.
6- @timspector
Long covid is twice as commun in female than male
80% of those reporting having long covid have good and bad days
Some people are recovering after 3 months
Long covid is twice as commun in female than male
80% of those reporting having long covid have good and bad days
Some people are recovering after 3 months
7- asymptomatic individuals also showed heart inflammation
Inflammatory markers are difficult to spot and might arrive later in the disease
There is a need of interdisciplinary research
Inflammatory markers are difficult to spot and might arrive later in the disease
There is a need of interdisciplinary research
8- @trishgreenhalgh: we wrote the longcovid article to help GP dealing with #LongCovid.
Some patients are getting slightly better, but some need referrals. Gp can deal with longcovid with their skills by reporting symptoms, LISTENING to patients, checking severe conditions
Some patients are getting slightly better, but some need referrals. Gp can deal with longcovid with their skills by reporting symptoms, LISTENING to patients, checking severe conditions
9- @timspector found same symptoms in patients with or Without positive test
- Loss of smell/taste is really specific to covid
@Dr2NisreenAlwan it’s a discrimination to reduce longcovid to positive test, we need a clinical definition based on symptoms
- Loss of smell/taste is really specific to covid
@Dr2NisreenAlwan it’s a discrimination to reduce longcovid to positive test, we need a clinical definition based on symptoms
10- @trishgreenhalgh we need to listen to patients clinically and for research.
Patients are experts in their condition
Collaboration is needed
Patients are experts in their condition
Collaboration is needed
A big thank you for all the panelists and to @bmj_latest for communicating on #LongCovid.
We need more communication to doctors and general public to get #LongCovid recognised.
As asked at WHO we need recognition, research rehab and communication and multidisciplinary collab
We need more communication to doctors and general public to get #LongCovid recognised.
As asked at WHO we need recognition, research rehab and communication and multidisciplinary collab
