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#MEAwarenesshour
The patients, carers and scientists in the #MECFS community are some of the smartest, most empathetic people I've ever met.
If you're suffering #LongCovid or are #covid1in20 ,we are here for YOU.
Please be here for us.
We can work on this together. 1/6
The patients, carers and scientists in the #MECFS community are some of the smartest, most empathetic people I've ever met.
If you're suffering #LongCovid or are #covid1in20 ,we are here for YOU.
Please be here for us.
We can work on this together. 1/6
We know of the uncertainty, not knowing, the contrasting information, lack of treatment. It's scary as hell. For #MECFS --which for a huge number is post-viral--it's been this way for DECADES. It cannot continue this way, and it cannot for #LongCovid 2/6
#MEAwarenesshour
#MEAwarenesshour
I'm not saying #MECFS is the same as #LongCovid .The research isn't here yet, but anecdotally, it looks VERY similar. There are co-morbidities for many w/covid, but there are in MECFS.
In this horrendous situation we can build relationships and solidarity. 3/6
#MEAwarenesshour
In this horrendous situation we can build relationships and solidarity. 3/6
#MEAwarenesshour
A very important study is taking place right now funded by the Open Medicine Foundation @OpenMedF looking at #COVID19 and #MECFS.
This is an incredibly important study that may unlock answers for so many people. 4/6
#MEAwarenesshour
Link below: https://www.omf.ngo/2020/06/13/in-the-news-omf-funded-study-on-covid-19/
This is an incredibly important study that may unlock answers for so many people. 4/6
#MEAwarenesshour
Link below: https://www.omf.ngo/2020/06/13/in-the-news-omf-funded-study-on-covid-19/
If you support the study on #COVID19, please consider donating. #MECFS'ers know this already- the researchers working at the CRC's--Stanford, Harvard, Uppsala, Montreal--with OMF are world-class scientists. We are all so lucky to have them. #LongCovid
5/6
#MEAwarenesshour
5/6
#MEAwarenesshour
To finish up if you have #LongCovid , I'm so, so sorry you're suffering. But please know that there is a community out there and scientists that will be there for you-and as I have said-they are some of the smartest, kindest people I've ever met. #MECFS
6/6
#MEAwarenesshour
6/6
#MEAwarenesshour
