#MEAwarenesshour

The patients, carers and scientists in the #MECFS community are some of the smartest, most empathetic people I& #39;ve ever met.

If you& #39;re suffering #LongCovid or are #covid1in20 ,we are here for YOU.
Please be here for us.

We can work on this together. 1/6

We know of the uncertainty, not knowing, the contrasting information, lack of treatment. It& #39;s scary as hell. For #MECFS --which for a huge number is post-viral--it& #39;s been this way for DECADES. It cannot continue this way, and it cannot for #LongCovid 2/6

#MEAwarenesshour

I& #39;m not saying #MECFS is the same as #LongCovid .The research isn& #39;t here yet, but anecdotally, it looks VERY similar. There are co-morbidities for many w/covid, but there are in MECFS.

In this horrendous situation we can build relationships and solidarity. 3/6

#MEAwarenesshour

A very important study is taking place right now funded by the Open Medicine Foundation @OpenMedF looking at #COVID19 and #MECFS.

This is an incredibly important study that may unlock answers for so many people. 4/6

#MEAwarenesshour

Link below: https://www.omf.ngo/2020/06/13/in-the-news-omf-funded-study-on-covid-19/">https://www.omf.ngo/2020/06/1...

If you support the study on #COVID19, please consider donating. #MECFS& #39;ers know this already- the researchers working at the CRC& #39;s--Stanford, Harvard, Uppsala, Montreal--with OMF are world-class scientists. We are all so lucky to have them. #LongCovid

5/6

#MEAwarenesshour

To finish up if you have #LongCovid , I& #39;m so, so sorry you& #39;re suffering. But please know that there is a community out there and scientists that will be there for you-and as I have said-they are some of the smartest, kindest people I& #39;ve ever met. #MECFS

6/6

#MEAwarenesshour