#NEISVoid

hedwyg (Heather R)

Hey #neisvoid peeps -- we talk about how difficult it can be to get help or support, especially in the face of "Let me know how I can help."So let's

Brianne's Haunted Soapbox

Okay so folx tag me in lots of really great questions and insights about chronic illness that I really want everyone to see.And also sometimes I fall behind/declare bankruptcy on

New Specialist Preparations. 1. Begin assembling materials far enough in advance that I can tolerate the daily toll of extra cognitive and physical exertion combined with the escalating negative effects

Leah McElrath 🏳️‍🌈

I just chose to leave a DM group filled with physicians because they had gone off on a tangent talking about patients presenting with pain whom they believed were med-seeking

julia ferraioli

I've been thinking *a lot* about how people with #ChronicIllness are not considered reliable narrators of their own experiences. #neisvoid It's why so many of us seek concrete diagnoses of

If you have fatigue and you exercise (or just *do* things), how do or can you tell the difference between being out of shape "tired" (which might be okay) and

Nora “Real Women Flatten Curves” Helfand

If there is one thing I want everyone on earth to understand before I die, it is that physiological illnesses can cause psychiatric symptoms that are not necessarily caused by

anyone else on #NEISvoid #chronicillness twitter been told not to nap by their doctor? i mentioned that i was concerned as i'm getting my normal amount of sleep but that

1) This idea of "secondary gains" is coming up a lot this week in relation to #LongCovid. I have a few thoughts on it. #NEISVoid #MECFS #DisabilityPride https://twitter.com/TomKindlon/status/1317884385094414336 2) You

🌻 Susannah 🌻 ♿ 🏳️‍🌈

Poll thread.If you're in the UK or Ireland & housebound/vulnerable to covid, (regardless of whether the gov decided you were!) & thus unable to safely go to a supermarket all

defective darling 🏳️‍🌈♿️🏳️‍⚧️

i think it's an autism/adhd thing for me but i'm finding out i actually fit the bill for a lot of conditions i thought i didn't have previously because they

Hello fellow chronically ill folks with limited energy.One thing that is really difficult for me is how few opportunities I have to do something nice for the people in my

Do no harm, take no shit (Casey)

Carpal instability...So far, confirmed carpal tunnel syndrome, DeQuervain’s, ulnar nerve impingement (likely from elbow though), & pain on the pinky side of my wrist...Anyone have any advice #neisvoid maybe? @monika_dryburgh

teona | chaotic cripple ♿👩🏾‍🦼

#neisvoid if you or anyone you know recovered from covid / semi-recovered (i.e #LongCovid ) if you have any advice I can give my dad and stepmom who caught it,

Emily Krebs🧂

Thread on COVID, social support, and #accessibility:My only sibling is getting married next week. No masks. 100+ guests. Folks traveling 1,600 miles to attend.I’m on immune suppressants.#NEISvoid #DisabilityTwitter I’ve been

Sarah K Stricker, MSHC

So I've been waiting for my insurance to approve IVIG for six months now. They denied it the first time and then again even once we got more diagnostic evidence.#chronicillness