#LongCOVID

#DigitalHealth Futurist 👨‍💻

Day 137 of #longcovid - most of the day has been wiped out again due to extreme fatigue, drifted in and out of sleep all day. This is the 8th

Programme on #LongCovid on @BBCRadio4 this morning. Treatment unlikely to involve a prescription for medication; instead work with a physiotherapist and psychologist. Patients better start getting used to self-management and

Chimére L. Smith

Is anyone else afraid of the lack of black women voices in #longcovid conversations? If anyone knows how challenging it is to be heard by doctors, it’s us. From fibroids

#science is broken - a thread: since the pandemic began we have been at the forefront of advocacy and science for #LongCovid/#PASC. In Nov 2020, we submitted a novel dataset

🔎Pauline Oustric

[thread] #LongCovid meeting by @BMJ_latest with a panel of researchers and doctors What is #LongCovid?How to diagnose it ?What can we do ?A new disease that people seems not to

Hannah Davis 🦈

Postviral vagal neuropathy (meaning a damaged vagus nerve) is found in some #LongCovid patients. This can result in things like vocal cord dysfunction & can be the reason some patients

#MEAwarenesshourThe patients, carers and scientists in the #MECFS community are some of the smartest, most empathetic people I've ever met. If you're suffering #LongCovid or are #covid1in20 ,we are here

Dr Birgit Clark

My Sunday morning ... I think it's day 167 of #longcovid. #longcovid.I have only started taking my temp again after reading my son's school's "safe return to school" guidance.

There have been some really thoughtful comments since we shared our first #longCOVID rehabilitation paper on here and I wanted to take some time to transparently share 5 points about

Without wishing to subtweet anyone, I am seeing much discussion of #LongCovid & similarities (or not) with #MECFS. I can only speak of my lived experience with the latter &

1/ At least 250,000 people with chronic illnesses like #MECFS, #Fibromyalgia, #POTS and #EhlersDanlosSyndrome are currently denied thorough investigation and effective health care in the UK. 2/ This number has

Hemmeli 🛌👩🏽‍🦽🐈🏳️‍🌈

#neisvoid I want to tell you about what GET did to me. Before GET I had medium ME. I was mostly home bound but I could take short walks, take

[Thread]Doctors with #longCOVIDI think many with #MyalgicEncephalomyelitis /#ChronicFatigueSyndrome may find the changed attitudes of interest. https://www.bma.org.uk/news-and-opinion/doctors-with-long-covid#longhaulers #longCOVID #PostCovi

LongCOVID in Academia

longcovacademia

From an anonymous PhD student living with #LongCovid: "Long Covid is absolutely terrifying and completely traumatising. Not knowing what was going on with my body for months on end was

1) This idea of "secondary gains" is coming up a lot this week in relation to #LongCovid. I have a few thoughts on it. #NEISVoid #MECFS #DisabilityPride https://twitter.com/TomKindlon/status/1317884385094414336 2) You

Ziyad Al-Aly, MD

Happy to share the latest paper from our team in @natureA comprehensive characterization of post acute sequelae of COVID-19#longcovid #PASChttps://www.nature.com/articles/s41586-021-03553-9@VAResearch @vahsrd @WUSTL @WUSTLpubhealth @WUSTLme