1/ Thread

Myalgic Encephalomyelitis/Chronic Fatigue Syndrome #MECFS

Is it really that bad?

Trigger warnings: The studies below paint a very bleak picture

#MyalgicE #SickNotWeak #pwME #MyalgicEncephalomyelitis #ChronicIllness #MedEd #MedTwitter #SickNotWeak
3/ ~25% of #MECFS patients are housebound or bedbound.....

....sometimes for decades!

That means no work, no vacations, no social life, lost time, lost goals, lost relationships..... #articleShareContainer">https://journals.sagepub.com/doi/abs/10.1177/1742395316644770?rfr_dat=cr_pub%3Dpubmed&url_ver=Z39.88-2003&rfr_id=ori%3Arid%3Acrossref.org&journalCode=chia #articleShareContainer">https://journals.sagepub.com/doi/abs/1...
8/ ME/CFS patients often face stigma and disbelief

As many as 31% doctors do not believe that #MECFS is a distinct syndrome

#MyalgicE #SickNotWeak #pwME #MyalgicEncephalomyelitis #ChronicIllness #MedEd #MedTwitter #SickNotWeak
https://www.ncbi.nlm.nih.gov/pubmed/10721550 ">https://www.ncbi.nlm.nih.gov/pubmed/10...
10/ #MECFS patients are disabled but most cannot get disability benefits

despite the long-term disabling nature of ME/CFS that leaves many patients unemployed and housebound, most dont qualify for disability benefits in many countries

#ChronicIllness #MedEd #MedTwitter
11/ #MECFS patients are sick.....

...very sick.

They need care, respect, acknowledgement and support

#MyalgicE #SickNotWeak #pwME #MyalgicEncephalomyelitis #ChronicIllness #MedEd #MedTwitter #SickNotWeak
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