#Hypermobility

Jane Murdoch | READ PINNED TWEET❤

OrphanageRules

Okay, so I said I was going to post a bunch of things about my health & the GoFundMe in my pinned tweet, so that's what I'm gonna do. Feel

Sparrow/Liz (semi-hiatus)

UntoNuggan

[Medical BS, gyn care]Hey so I know lots of people have super bad periods but have trouble getting a doctor to do anything about itWrote a short thread explaining how

Ann Memmott PGC🌈

AnnMemmott

Incidentally, if you are new to the fine world of autistic people, you may need to know there are rival groups with different ways of thinking about autism. I shall

Nicola Jeffery

NicolaCJeffery

#PatientsAreNotFakingHmm ok..., where to begin with this...? Maybe as a child when my "growing pains" & Alopecia was put down to being "jealous of my brother's" by my GP or

Noor (he/him) 🧜🏽📿

SnoringDoggo

You know what, fuck it, let’s talk about money and #CripTax for a second. I have the blessing of a full time job with benefits, which I am incredibly grateful

Lisa Jamieson

LoveInYourTummy

Today is the 6-year anniversary of the start of my spontaneous spinal CSF leak. It resulted in me being bedridden/housebound for 3 months. It also led to the realisation that

Bob Simonoff

SimonoffBob

1/POTS is associated with orthostatic presyncope, postural tachycardia, palpitations, chest discomfort, dyspnea, and “brain fog”, but also chronic abdominal pain, migraine headache, chronic fatigue, hypermobility and musculoskeletal pain.https://www.

Evie Nevin

Evie_Nevin

Storytime:1: So after my initial diagnosis Ehlers Danlos Syndrome (with a private consultant), I came back to my GP who completely dismissed the diagnosis. So I decided to see a

Jo

grimalkinrn

I have to say something. I got asthma my first year as a new grad. I kept having trouble breathing during emergencies. It was winter. When I saw my doctor,

Jennifer Brea🦒

jenbrea

Acetylcholine receptor autoantibodies have been found in subsets of #MECFS and #POTS patients. This can impair autonomic nervous system function and mast cell regulation. What I did not know is

Sammy

Orithella

Things That I Wish People Considered About #EhlersDanlosSyndrome: A Thread. #neisvoid So, #EDS has officially come out of hibernation. October - February is when I experience, on average: more flare-ups,

Sabeeha Malek

SabeehaMalek

Excited to share my new paper with @ActinDomain! We are proposing an updated definition of #EDS/#HSD, and explain how they could all be disorders of membrane-bound collagen. We explain the

Poisonous Mapping

PoisonousMapper

For every like this tweet gets, I will tell you something about me and/or give an opinion on something. (define didn't steal this from Cheeze) 1. I have HMS (Hypermobility

BBC World Service

bbcworldservice

THREAD: How will #COVID19 change the way we travel?(1/7) Wanting to travel in Europe this summer? Here’s @GavinLeeBBC’s advice on what you’ll need to think abouthttps://www.bbc.co.uk/sounds/play/p08d8x7s (2/7) ‘Disinfection tunnels

Brianne's Haunted Soapbox

bennessb

Okay so let's make a symptom glossary.Each tweet in this thread will be for discussing a different symptom family, which I know will get unwieldy.Reply to this tweet with symptoms

Heron Greenesmith, Esq.

herong

FYI if you you have chronic pain and it gets MUCH worst before your period, I *see* you today. DYK THERE'S A HORMONE CALLED RELAXIN THAT LITERALLY RELAXES ALL YOUR