#HEDS

I think the term *Hypermobile* Ehlers-Danlos Syndrome is entirely inadequate & superficial & leading to widespread misunderstanding & mistreatment of patients. It paints a picture of a benign condition—someone who’s

ace tilton ratcliff ♿️

tw: talk about bathroom stuff, hEDS related learned yesterday in one of my groups that hEDS patients can have a regular bathroom schedule and STILL be constipated. apparently because our

The Chronic Theory ♿️

Some 2020 research on MCAS, hEDS, POTS. It’s going to prove controversial. ‘We conducted an extensive review of the literature using two different search strategies. All three clinical entities are

I have a #hypermobile #hEDS #EDS #DisabledTwitter question!I don’t think I get subluxations but had an odd moment the other day.My right ear was sore (I had been wearing headphones

Hell on Wheels🔥♿🔥

rollwthepunches

Hey. Remember when Lara said people succumb to their EDS bc it's easier??That looking too sick is bad and you[r internalised ableism] should always want to win? And how that

Jun (author Heidi Cullinan)

Let's do a thread on Heidi using CBD/THC to manage her #hEDS. Setting: I live in Iowa/US, where cannabis for chronic pain just became a thing. My pain levels vary

teona | chaotic cripple ♿👩🏾‍🦼

people genuinely think disabled people don't have sex.just like my joints, this coochie pops, thanks i really debated over tweeting this but I'm a grown ass woman with a whole

LoveInYourTummy

Today is the 6-year anniversary of the start of my spontaneous spinal CSF leak. It resulted in me being bedridden/housebound for 3 months. It also led to the realisation that

Lena // #BlackLivesMatter // 🏳️‍🌈 ♿️

This weekend has been genuinely interesting when it comes to awareness. I previously considered May 2017 as starting point of ME symptoms. It wasn’t, that’s when it worsened. I’ve had

Chloe, PhD 🥽🧪🔬🦠🧫🧬

I have a lot of posts critiquing doctors. So, I wanted to make a thread highlighting a great experience I had with a doctor a couple years ago. This is

ace tilton ratcliff ♿️

when you see your doctor who knows you have hEDS & tell him the labral tear + cyst + delamination is acting up & the way you’re compensating is pulling

It’s #EhlersDanlos #EDSAwarenessMonth and I am goddamn muting the hashtags because I will hurl something out a window if I see another #zebralyfe #woundedwarriorprincess post. Also pls don’t tag or

IT’S GO TIME!! THESE MAMAS NEED THIS MONEY!! They have been fighting for care for themselves and their kids all alone, until now. Let's show our most vulnerable Hyp+ community

I’ve spent my entire journalism career — 22 years — working to uphold standards including accuracy and fairness. I love copy editing, and to see newspapers across the country hack

Everything you ever wanted to know (or didn't want to know) about headlines, by someone who writes more than 200 of them a month. (Thread) First let's get one thing

Alo peopl i am gowing 2 b meking a Tred of de Peopl dat i no av verey smellie brethh, widout aving 2 no dem in person. Den i wil