#Dysautonomia

how am i disabled? let's first look at the official definition of being disabled, because many people in the USA especially define it as being "on disability," but that's not
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Today marks 7 months of living with COVID symptoms. I still feel like a shell of the person I was, but I thought I'd give some updates on this thread,
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I am growing increasingly frustrated by the rhetoric around COVID (esp masks, distancing, prevention, etc) that says the only thing we're trying to protect people from is dying.Or that, if
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So, my thoughts on the post-Covid web portal and £8 million for research.Imagine you're starving, right?You walk for miles and find a decent little cafe offering free soup. You ask
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I’ve rustled up table of #LongCovid symptomologies, using my years of no medical expertise whatsoever. It's not as accessible as I'd like – I will update and bedazzle after feedback.
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Hi, for anyone that doesn’t know me my name is Cassiel, or Cas for short and I have a few #invisibledisabilities . I have fibromyalgia, polycystic ovarian syndrome (pcos) and
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Ah yes, I see we are doing Shower Discourse yet againDisabled folks who have trouble with showering regularly (whether due to Dysautonomia or depression or something else): please be gentle
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The “OMG, #COVID19 can cause long-term illness, possibly long-term disability, who knew such a horrible thing was possible?” articles stir in me so many mixed emotions. I feel sorry for
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Acetylcholine receptor autoantibodies have been found in subsets of #MECFS and #POTS patients. This can impair autonomic nervous system function and mast cell regulation. What I did not know is
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Great point. Let’s dissect a few things on deaths of those in restraints.First up: “if you can talk, you can breathe”It takes extremely little respiratory effort to talk—and it’s a
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Okay so let's make a symptom glossary.Each tweet in this thread will be for discussing a different symptom family, which I know will get unwieldy.Reply to this tweet with symptoms
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On this day 25 years ago, Christopher Reeve sustained a spinal cord injury; today there is still no fix, no cure. COVID19 abruptly cut short the SCI Roadmap project inspired
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Omicron wave of mass infection showing its impact. Too many friends & colleagues reaching out for advice on #LongCovid. Heartbreaking. A on Rest & Pace. Biggest advice: don't repeat the
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Petra Klinge’s talk on tethered cord syndrome blew my mind. It‘s given me a deeper understanding of how tethered cord syndrome might play a fundamental role in the patholophysiology and
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To help raise awareness of the #COVID19 long-haulers - 'mild' cases that have people struggling for months - this is a curated thread of English-language press coverage of the #LongCovid
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In a Blood-feud #white #Christians need to know who ARE the Pharisee-Edomites and what have they been doing to hasten our demise. As you can see (((they))) have been very
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