Thread by @james__glen, To help raise awareness of the #COVID19 long-haulers

To help raise awareness of the #COVID19 long-haulers - 'mild' cases that have people struggling for months - this is a curated thread of English-language press coverage of the #LongCovid experience. The 1st post is the old thread with details of the FB group #LongCovidThread

There are 99 articles below in the linked thread, please visit @long_covid for details of the Facebook group. #LongCovid https://twitter.com/james__glen/status/1278979730855911424?s=19

https://twitter.com/james__glen/status/1278979730855911424?s=19

"I'm a Covid-19 'long-hauler'. For us, there is no end in sight" by Jemma Kennedy in @ObserverUK
#longcovid #longcovidthread https://www.theguardian.com/commentisfree/2020/jul/26/im-a-covid-19-long-hauler-im-still-dealing-with-pain-fatigue-and-misery

I'm a Covid-19 'long-hauler'. For us, there is no end in sight | Jemma Kennedy

Thousands of people like me are suffering ill health months after contracting the virus. We need more help

https://www.theguardian.com/commentisfree/2020/jul/26/im-a-covid-19-long-hauler-im-still-dealing-with-pain-fatigue-and-misery

"'We will live with this for years': virus expert on debilitating after-effects of Covid-19 - Virus expert Prof Peter Piot, a coronavirus sufferer, highlights how the disease affects indiviuals"
By @annegulland for @Telegraph
#LongCovid #longcovidthread https://www.telegraph.co.uk/global-health/science-and-disease/will-live-years-virus-expert-debilitating-after-effects-covid/

'We will live with this for years': virus expert on debilitating after-effects of Covid-19

Leading public health researcher 'came out' as coronavirus sufferer to highlight how the disease affects individuals

https://www.telegraph.co.uk/global-health/science-and-disease/will-live-years-virus-expert-debilitating-after-effects-covid/

"'This stuff is real': COVID-19 symptoms can linger for months, long haulers say"
By @sharon_kirkey for @nationalpost
#longcovid @long_covid #covidlonghaulers #covidlong https://nationalpost.com/news/this-stuff-is-real-covid-19-symptoms-can-linger-for-months-long-haulers-say/wcm/c1678b74-188f-4f0b-96c7-1007df83b89b/amp/?__twitter_impression=true

'This stuff is real': COVID-19 symptoms can linger for months, long haulers say

https://nationalpost.com/news/this-stuff-is-real-covid-19-symptoms-can-linger-for-months-long-haulers-say/wcm/c1678b74-188f-4f0b-96c7-1007df83b89b/amp/?__twitter_impression=true

"Medics are being disproportionally affected by chronic ‘long tail’ #covid It’s threatening to leave a legacy we’re not prepared for" by @RachelPugh2 in @Medscape
#longcovid @long_covid #longcovidthread https://www.medscape.com/viewarticle/934287?src=soc_tw_200722_mscpedt_news_mdscp_&faf=1

Medics With 'Long COVID' Call for Clinical Recognition

Medics with chronic post-COVID illness warn of impact of 'unseen' prolonged disease.

https://www.medscape.com/viewarticle/934287?src=soc_tw_200722_mscpedt_news_mdscp_&faf=1

"Coronavirus Recovery: A GROWING number of people are still battling the fallout from having #Covid19 – months after symptoms first appeared." by @JodyyDC for @brightonargus | #LongCovid @long_covid #LongCovidThread https://www.theargus.co.uk/news/18608856.coronavirus-recovery-brighton-dj-guy-lloyd-symptoms/

'I had all the classic symptoms' - DJ still has lingering coronavirus problems

A GROWING number of people are still battling the fallout from having Covid-19 – months after symptoms first appeared.

https://www.theargus.co.uk/news/18608856.coronavirus-recovery-brighton-dj-guy-lloyd-symptoms/

"Tennis ace @GrigorDimitrov has detailed his battle with Covid-19 & said it was “no fun” dealing with the physical and mental effects of the virus." - Please be careful if you're still feeling any symptoms, Grigor.
#LongCovid #LongCovidThread @long_covid https://www.theguardian.com/sport/2020/jul/28/grigor-dimitrov-says-covid-19-was-hard-on-him-and-effects-of-virus-are-still-being-felt

Grigor Dimitrov says Covid-19 was 'hard' on him and effects of virus are still being felt

Bulgarian tennis player Grigor Dimitrov has detailed his mental and physical battle with coronavirus – and it was not fun

https://www.theguardian.com/sport/2020/jul/28/grigor-dimitrov-says-covid-19-was-hard-on-him-and-effects-of-virus-are-still-being-felt

"Suffering From Covid for Months—and Battling Murky Test Results Too"
By @rddysum for @WSJ -
#longcovid #longcovidthread @long_covid #covidlong https://www.wsj.com/articles/suffering-from-covid-for-monthsand-battling-murky-test-results-too-11595865869

Suffering From Covid for Months—and Battling Murky Test Results Too

Doctors believe many people are fighting Covid symptoms long-term, but testing inconsistencies complicate the picture.

https://www.wsj.com/articles/suffering-from-covid-for-monthsand-battling-murky-test-results-too-11595865869

"There’s mounting evidence that coronavirus may leave debilitating symptoms for months after the virus has gone. @HannahGrayBBC has been speaking to 3 people who've been feeling ill for almost 4 months" from @BBCLookNorth - #LongCovid #LongCovidThread

"COVID-19 'long-haulers' report nearly 100 symptoms for more than 100 days" by @erikaedwardsnbc | #longCovid #longcovidthread @long_covid #covidlong #covidlonghaulers https://www.nbcnews.com/health/health-news/covid-19-long-haulers-report-nearly-100-symptoms-more-100-n1235217

COVID-19 'long-haulers' report nearly 100 symptoms for more than 100 days

"How long does it take you to get back to normal? That's an open question," Dr. Anthony Fauci told NBC News.

https://www.nbcnews.com/health/health-news/covid-19-long-haulers-report-nearly-100-symptoms-more-100-n1235217

"From ‘brain fog’ to heart damage, COVID-19’s lingering problems alarm scientists" by Jennifer Couzin-Frankel for @ScienceMagazine
#longcovid #longcovidthread @long_covid https://www.sciencemag.org/news/2020/07/brain-fog-heart-damage-covid-19-s-lingering-problems-alarm-scientists

From ‘brain fog’ to heart damage, COVID-19’s lingering problems alarm scientists

Some COVID-19 survivors are still sick months later. Doctors want to learn why and what they can do

https://www.sciencemag.org/news/2020/07/brain-fog-heart-damage-covid-19-s-lingering-problems-alarm-scientists

"COVID-19 long-term effects: People report ongoing fatigue, brain fog and breathlessness, so what's happening in the body?" by @teegstar for @ABCscience | #LongCovid #longcovidthread @long_covid https://www.abc.net.au/news/health/2020-07-31/coronavirus-long-and-medium-term-health-effects/12499436

A mild case of COVID-19 doesn't mean you won't experience any long-term effects

Anecdotes are emerging of people who have recovered from COVID-19 but have strange, ongoing symptoms such as prolonged fatigue, breathlessness, brain fog and digestive symptoms. What does the...

https://www.abc.net.au/news/health/2020-07-31/coronavirus-long-and-medium-term-health-effects/12499436

"There is mounting evidence that Covid-19 may leave debilitating symptoms months after the virus has gone." by @HannahGrayBBC via @BBCBreakfast
#LongCovid #Longcovidthread #COVID19UK #COVIDlonghaulers #covidlong

BARCELONA: " @salutcat identifies some thirty possible symptoms of persistent covid-19" from @diariARA (link to article through Google translate)
#LongCovid #LongCovidthread @long_covid
#COVIDPERSISTENTE #rehabresearchrecognition
https://translate.googleusercontent.com/translate_c?depth=1&nv=1&pto=aue&rurl=translate.google.com&sl=auto&sp=nmt4&tl=en&u=https://m.ara.cat/societat/Identificats-trentena-possibles-simptomes-persistent-coronavirus-covid-19_0_2501149883.html%3Futm_medium%3Dsocial%26utm_source%3Dtwitter%26utm_campaign%3Dara&usg=ALkJrhghNLLSiJsk048GvIXZzqmaHjxqLg

"‘Long-haul Covid’: Fatigue plagues thousands suffering post-coronavirus symptoms" by @AnnaSophieGross for @FT | #LongCovid #LongCovidThread @long_covid https://www.ft.com/content/8a8c9630-7cce-417a-8732-f0589009be14

Fatigue plagues thousands suffering post-coronavirus symptoms | Free to read

‘Long-haul Covid’ has already become mired in controversy over causes and treatment

https://www.ft.com/content/8a8c9630-7cce-417a-8732-f0589009be14

"Brain fog, phantom smells and tinnitus: my experience as a Covid 'long hauler'" by @ahandvanish via @guardian | #LongCovid #longcovidthread @long_covid #covidlong https://www.theguardian.com/commentisfree/2020/aug/05/brain-fog-phantom-smells-and-tinnitus-my-experience-as-a-covid-long-hauler

Brain fog, phantom smells and tinnitus: my 4 months (and counting) of Covid-19 | Hannah Davis

I fell sick on 25 March. Four months later, I’m still dealing with fever, cognitive dysfunction, memory issues and much more

https://www.theguardian.com/commentisfree/2020/aug/05/brain-fog-phantom-smells-and-tinnitus-my-experience-as-a-covid-long-hauler

"Half a million patients have 'long Covid'" - Front page of The Daily Telegraph! |
#MildCovid #apresJ90 #covid1in20 #covidpersistente #MitCoronaLeben #koronaoire #covidpersistenteitalia #apresJ20 #covidlong #longcovidthread

"Actress @Alyssa_Milano
Tests Positive for COVID-19 Antibodies After 3 Negative Results: 'I Thought I Was Dying'" by Gabrielle Chung for @people | #LongCovid
#longcovidthread @long_covid https://people.com/tv/alyssa-milano-tests-positive-for-covid-19-antibodies-after-negative-coronavirus-results/

Alyssa Milano Tests Positive for COVID-19 Antibodies After 3 Negative Results: 'I Thought I Was...

The actress said she tested negative for coronavirus twice at the end of March and had initially received a negative result in her COVID-19 antibody test after she was "feeling a bit better"

https://people.com/tv/alyssa-milano-tests-positive-for-covid-19-antibodies-after-negative-coronavirus-results/

"Calls for more support for those living with long-term effects of Covid-19" by @hannahITV feat. @GwynneMP @PaulGarnerWoof | #longcovid #longcovidthread @long_covid https://www.itv.com/news/granada/2020-08-05/hannah-miller-calls-for-more-support-for-those-living-with-long-term-effects-of-covid-19

Hannah Miller: calls for support for those with long-term effects of Covid-19 | ITV News

A North West Labour MP is calling on the Government to make sure people living with long-term effects of Covid-19 are adequately supported by the welfare system.

https://www.itv.com/news/granada/2020-08-05/hannah-miller-calls-for-more-support-for-those-living-with-long-term-effects-of-covid-19

"Can you get Covid19 twice? There isn't a single proven case of reinfection anywhere in the world...but what if you don't develop antibodies?" @annastewartcnn investigates, feat. @SueStan64308067 | #LongCovid #LongCovidThread @long_covid

"'100 days later, Covid-19 is still with me' - Many people who contracted the virus have suffered symptoms for weeks afterwards" - @muirishouston via @IrishTimesLife | #longcovid #longcovidthread @long_covid https://www.irishtimes.com/life-and-style/health-family/100-days-later-covid-19-is-still-with-me-is-post-covid-syndrome-a-real-thing-1.4309766

'100 days later, Covid-19 is still with me' - Is Post-Covid syndrome a real thing?

Many people who contracted the virus have suffered symptoms for weeks afterwards

https://www.irishtimes.com/life-and-style/health-family/100-days-later-covid-19-is-still-with-me-is-post-covid-syndrome-a-real-thing-1.4309766

"‘Long Covid’ sufferers say they need more support" - @krishgm @Channel4News | #longcovid #longcovidthread @long_covid https://www.channel4.com/news/long-covid-sufferers-say-they-need-more-support

‘Long Covid’ sufferers say they need more support

Tens of thousands of people in the UK are now living with serious ongoing health conditions months after catching Covid-19, and not enough is being done to support them.

https://www.channel4.com/news/long-covid-sufferers-say-they-need-more-support

"The Soft Butch That Couldn’t (Or: I Got COVID-19 in March and Never Got Better)" by @theheatherhogan for @autostraddle | #longcovid #longcovidthread @long_covid https://www.autostraddle.com/the-soft-butch-that-couldnt-or-i-got-covid-19-in-march-and-never-got-better/

The Soft Butch That Couldn't (Or: I Got COVID-19 in March and Never Got Better) | Autostraddle

My long haul COVID-19 story, from getting the virus in March to my dysautonomia diagnosis. It's the LongCovid symptoms for me.

https://www.autostraddle.com/the-soft-butch-that-couldnt-or-i-got-covid-19-in-march-and-never-got-better/

"65% of COVID-19 survivors surveyed report experiencing hair loss, among other long-term effects" feat.
@mhornig | #longcovid #longcovidthread @long_covid - https://www.fox35orlando.com/news/65-of-covid-19-survivors-surveyed-report-experiencing-hair-loss-among-other-long-term-effects

65% of COVID-19 survivors surveyed report experiencing hair loss, among other long-term effects

A recent survey conducted by Survivor Corps, a COVID-19 nonprofit, and Dr. Natalie Lambert from Indiana University School of Medicine found that 65% of coronavirus survivors reported hair loss.

https://www.fox35orlando.com/news/65-of-covid-19-survivors-surveyed-report-experiencing-hair-loss-among-other-long-term-effects

"Coronavirus: 'I survived, but am now living a nightmare'" by Ali Gordon, BBC News NI | #longcovid #longcovidthread @long_covid - https://www.bbc.co.uk/news/uk-northern-ireland-53611139

'I survived coronavirus but am living a nightmare'

Jennifer Duddy, 32, from Belfast, has developed chronic fatigue syndrome since having Covid-19.

https://www.bbc.co.uk/news/uk-northern-ireland-53611139

"The Covid long haul: why are some patients not getting better?" Podcast by @MythiliRao feat. @lukeharding1968
| #LongCovid
#longcovidthread @long_covid #CovidLongHaulers | https://www.theguardian.com/news/audio/2020/aug/10/the-covid-long-haul-why-are-some-patients-not-getting-better

The Covid long haul: why are some patients not getting better? – podcast

When the Guardian’s Luke Harding began suffering symptoms of Covid-19 he assumed he would be laid low for a couple of weeks. Five months later he is still unwell, and has found hundreds of people...

https://www.theguardian.com/news/audio/2020/aug/10/the-covid-long-haul-why-are-some-patients-not-getting-better

"Coronavirus patients discovering unexpected side effects" by @tabowden
for @abcnews | #longcovid #longcovidthread @long_covid | https://www.abc.net.au/news/2020-08-10/coronavirus-patients-discovering-unexpected-side-effects/12531284

Coronavirus patients discovering unexpected side effects

Fatigue and breathlessness are well-known symptoms of COVID-19, but many patients recovering from the virus are also experiencing a range of other problems, including hair loss and tingling sensati...

https://www.abc.net.au/news/2020-08-10/coronavirus-patients-discovering-unexpected-side-effects/12531284

"Symptoms lasting several weeks and impairing a person’s usual function should not be called mild." by @Dr2NisreenAlwan for @nature | #longcovid #longcovidthread @long_covid | https://www.nature.com/articles/d41586-020-02335-z

A negative COVID-19 test does not mean recovery

Pandemic policy must include defining and measuring what we mean by mild infection.

https://www.nature.com/articles/d41586-020-02335-z

"We Need to Take Care of the Growing Number of Long-Term COVID-19 Patients" By @_2000shazza & @GYamey for @TIME | #LongCovid #LongCovidThread @long_covid | https://time.com/5878448/longterm-covid19-recognition-research/

We Need to Take Care of the Growing Number of Long-term COVID-19 Patients

A large number of COVID-19 patients suffer from long-term effects. We need recognition, research and rehabilitation to help them.

https://time.com/5878448/longterm-covid19-recognition-research/

"Coronavirus - the long term symptoms", thanks @BBCNicola & @BBCLookEast (1/2) | #longcovid #Longcovidthread @long_covid |

"Coronavirus - the long term symptoms", thanks @BBCNicola & @BBCLookEast (2/2) | #longcovid #Longcovidthread @long_covid |

"Had coronavirus infection? Still got symptoms weeks to months later? If so, this is the show for you..." Podcast by The @NakedScientists feat. @PaulGarnerWoof, @keyeri and others
| #LongCovid #LongCovidThread @long_covid | https://www.thenakedscientists.com/podcasts/naked-scientists-podcast/sick-covid-long-haulers

Sick of COVID: The Long Haulers

Meet the COVID-19 patients who are still suffering the after-effects of the virus, months after catching it...

https://www.thenakedscientists.com/podcasts/naked-scientists-podcast/sick-covid-long-haulers

"I’m a COVID-19 long-hauler and an epidemiologist – here’s how it feels when symptoms last for months" by @drgagewitvliet via @ConversationUS
| #LongCovid #LongCovidThread @Long_Covid | https://theconversation.com/im-a-covid-19-long-hauler-and-an-epidemiologist-heres-how-it-feels-when-symptoms-last-for-months-143676

I'm a COVID-19 long-hauler and an epidemiologist – here's how it feels when symptoms last for months

Margot Gage Witvliet went from being healthy and active to fearing she was dying almost overnight. An epidemiologist, she dug into the research to understand what's happening to long-haulers like her.

https://theconversation.com/im-a-covid-19-long-hauler-and-an-epidemiologist-heres-how-it-feels-when-symptoms-last-for-months-143676

"Tenor @LeeDavidBowen developed symptoms of Coronavirus at the beginning of February, and is still living with the long-term effects" via @CaerphillyObsvr | #LongCovid #LongCovidThread @Long_Covid | https://caerphilly.observer/news/993179/opera-singers-six-month-coronavirus-nightmare/

Trethomas Tenor Lee David Bowen discusses long-term Covid-19 battle

Lee David Bowen, 49, developed symptoms of the virus at the beginning of February, and is still living with the long-term effects of Covid-19.

https://caerphilly.observer/news/993179/opera-singers-six-month-coronavirus-nightmare/

"Coronavirus: I think I have 'Long Covid' but I'm struggling to be diagnosed", @long_covid Support Group member Hayley on her experience in New Zealand, via @NZStuff
| #LongCovid #LongCovidThread | https://i.stuff.co.nz/national/health/coronavirus/122431932/coronavirus-i-think-i-have-long-covid-but-im-struggling-to-be-diagnosed

Coronavirus: I think I have 'Long Covid' but I'm struggling to be diagnosed

OPINION: It’s been 21 weeks since I got sick. I haven’t drawn a full, clear breath since day one.

https://i.stuff.co.nz/national/health/coronavirus/122431932/coronavirus-i-think-i-have-long-covid-but-im-struggling-to-be-diagnosed

"Actress Emma Samms has spoken about being one of the growing number of “long Covid” sufferers with debilitating symptoms for months without end." - @EmmaSamms1 in @thetimes (paywalled)
| #longcovid #longcovidthread @long_covid | https://www.thetimes.co.uk/article/actress-emma-samms-suffers-six-month-hell-of-covid-fatigue-vdp60kvrw

Actress Emma Samms suffers six-month hell of Covid fatigue

A former Dynasty actress and partner of the BBC newsreader Simon McCoy has spoken about being one of the growing number of “long Covid” sufferers with debilitating symptoms for months without end.Emma

https://www.thetimes.co.uk/article/actress-emma-samms-suffers-six-month-hell-of-covid-fatigue-vdp60kvrw

"After Covid: Experts call for urgent help as victims detail long-lasting, life-changing legacy of coronavirus".
Feat. @lesleymacniven, @keyeri, @SepsisUK, @amyismall and others, via @Sunday_Post
| #LongCovid #LongCovidThread @long_covid | https://www.sundaypost.com/fp/experts-urgent-help-is-needed/

After Covid: Experts call for urgent help as victims detail long-lasting, life-changing legacy of...

The long-lasting and life-changing legacy of Covid-19 is today laid bare as Scots victims describe how the virus has inflicted months of ill-health, exhaustion and mental anguish.

https://www.sundaypost.com/fp/experts-urgent-help-is-needed/

"Still ill with coronavirus six months later: 'I have no idea how to get better'" by @stephhegarty for @BBCNews
| #longcovid #longcovidthread @longcovid | https://www.bbc.co.uk/news/stories-53948028

She got ill when the pandemic hit - and still is, six months later

For some people Covid just will not go away. One woman who thinks she had it has made an Instagram diary.

https://www.bbc.co.uk/news/stories-53948028

"Long Covid symptoms put my whole life on hold – but doctors didn’t believe me" by @LoisPryce in @theipaper
| #longcovid #Longcovidthread @long_Covid | https://inews.co.uk/news/health/long-covid-symptoms-effects-coronavirus-tail-doctors-614640

Long Covid symptoms put my whole life on hold - but doctors didn't believe me

Lois Pryce had seemed to recover after catching Covid-19 in March. Then she was floored by fatigue - and she still struggles six months later

https://inews.co.uk/news/health/long-covid-symptoms-effects-coronavirus-tail-doctors-614640

"Respiratory Dr @DavidT_Arnold, of the @ResearchNBT
DISCOVER study, talks to @BBCkatyaadler regarding #LongCovid rehab, research and recognition"
Coverage starts at 4m30s on @BBCSounds, available for 28 days | #LongCovidThread @long_covid | https://www.bbc.co.uk/sounds/play/m000m5rg#playt=00h08m10s

The Emma Barnett Show - with Katya Adler - BBC Sounds

Katya Adler presents original journalism and surprising news stories.

https://www.bbc.co.uk/sounds/play/m000m5rg#playt=00h08m10s

"128 Days Later - What It's Like To Live With Long COVID" by @sophiewilsonuk for @HuffPost
| #longcovid #longcovidthread @long_covid | https://bit.ly/3hSmAYi

128 Days Later: What It's Like To Live With Long Covid

Long Covid is a term used to describe an illness in people who have recovered from Covid-19 but continue to suffer symptoms many weeks and often months later. It is thought to affect around one in 10...

https://bit.ly/3hSmAYi

Thanks, Sophie for sharing this, it really resonated with me. Feel better soon.

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