#Millionsmissing

So yesterday it was #MEawarenessDay/#MillionsMissing. Some tweets were sent. Now #PEM. Just fired up my computer for #MEawarenessHour after a day necessarily spent mainly in darkness and notice that I

#MEAction Network

Share the story of #MillionsMissing this week on your Social feed using these graphics.Tag #MillionsMissing.See more graphics: https://drive.google.com/ …/1l4prgyN59NK9DALN4f7e9RyBNPqFXhur USE this text with the graphic: Some post-COVID patients

exceedhergrasp1

We're asking #pwME (myalgic encephalomyelitis/chronic fatigue syndrome) to share their personal stories this #MillionsMissing. Here is mine. (Long THREAD) When I was in later childhood, my mom caught mono in

Today, #May12, is #mecfs awareness day. While #COVID19 can damage almost any organ (possibly even testes, pancreas etc), CFS/ME is likely among the most common sequelae. Why focus only on

Seeing everyone posting their old senior pics made me want to look back at my old yearbook, something I haven’t done since I graduated. BIG mistake. Now I’m sitting here

I remember @richardvallee referring to @MEcfs someplace as the catch-22 disease: whatever you do or say, you are f****d.• Some activity —> others assume capacity you don’t have • Not

#PatientsAreNotFakingHmm ok..., where to begin with this...? Maybe as a child when my "growing pains" & Alopecia was put down to being "jealous of my brother's" by my GP or

LibertyFarmEmma

The rhetoric around furloughed workers is so radically different from that around disabled people. Imagine if the chancellor said 'noone wants to be on ESA, it's not their fault businesses

Thank you so much for sharing & I must share with you; I was first told I had #Fibromyalgia aged 19 after years of "it must be growing pains or

Hannah Davis 🦈

One of the most jarring and upsetting things I've learned as part of this #longcovid journey is the entire world of post-viral and post-infectious illness. One of these, a neuroimmune

Without wishing to subtweet anyone, I am seeing much discussion of #LongCovid & similarities (or not) with #MECFS. I can only speak of my lived experience with the latter &

Millions Missing France

MillionsMissgFr

Etat d’un malade d’encéphalomyémite myalgique *légère* : 1 an Normal: peut courir, faire une rando, sortir à une soirée Pas bien: préfère rester à la maison, marche 1h = fatigant

Millions Missing France

MillionsMissgFr

#aprèsJ20 @apresj20 #aprèsJ60 #aprèsJ90 #aprèsJ120 Le syndrome de fatigue chronique, ou encéphalomyélite myalgique (EM), séquelle possible du #COVID19 ? Beaucoup d'infos fausses & dangereuses circulentNous sommes une asso de

1/ At a recent @MEActNet briefing, Dr. Anthony Komaroff confirmed his earlier prediction that we had reason to expect some w/ COVID-19 would develop a debilitating chronic fatigue syndrome w/

Just want to reflect a bit on the proposed #NDIS changes due to take effect this year.I was on the verge of putting together an application when all of this