Thank you so much for sharing & I must share with you; I was first told I had #Fibromyalgia aged 19 after years of "it must be growing pains or period problems" by many #NHS doctors. I was then left with #GET (guided exercise therapy) & anti-depressants. I did my own research 1/6 https://twitter.com/Gem_Ebisu/status/1273549346919854080

And discovered, as have many others that #Fibromyalgia is nothing more than a "parking mental heath diagnosis" . I have had to find the means/support to privately prove that I was actually living with #EDS a type of genetic connective tissue disorder, #ME with #Mitochondria 2/6

Dysfunction and also #Mycotoxins, to name a few and have not only found an amazing doctor who understands this in . @MyhillNews but also the possibility of treatments both dietry and anti-viral based, that currently under NICE guideliness would be classed as none existent 3/6

As the only treatments offered to the #MillionsMissing #pwME in the #UK and globally is #CBT & or #GET, thanks to #PACEtrial, a very dodgy "scientific" trial thats results have been the bases for any "unexplained" #ChronicPain or #MUS (multi unexplained symptoms) patient. 4/6

There are sadly so many who are potentially living with an incorrect diagnosis & are just not being taken seriously, so in reality IMO the cost of the real treatments/ support even rights in many cases for these chronically ill people is kept low/ non-existent. And finally 5/6

It has also kept what would of otherwise of been a very strong #Disabled patient community force completely divided under different labels including the division of real funding and further research for us all. #Solidarity 6/6