#Meawarenesshour

Jessica Diamond ♿ She/her

JessicaXDiamond

Things you can do to help people with ME, an #MEAwarenessHour thread. /1 1. Watch 'Unrest' by @jenbrea. It's on Netflix UK (included with subscription) and Amazon (have to pay.

James David Chapman

After 35yrs my recovery from M.E is based on avoiding both PEM crash & Deconditioning. Both theories are correct & have value. When severe, the aim is to note variations

So yesterday it was #MEawarenessDay/#MillionsMissing. Some tweets were sent. Now #PEM. Just fired up my computer for #MEawarenessHour after a day necessarily spent mainly in darkness and notice that I

I saw this earlier today & it reminded me of the difficulty I faced, 10 years ago, when confronted with an illness that never ended. Here's a short thread on

#MEAwarenesshourThe patients, carers and scientists in the #MECFS community are some of the smartest, most empathetic people I've ever met. If you're suffering #LongCovid or are #covid1in20 ,we are here

#MEawarenesshourThe IOM report estimated the economic cost for #MECFS to be $17billion to $24billion dollars annually.That's just the US. This is not taking into account human cost and suffering, something

James David Chapman

As an M.E patients of 35yrs and well-known patient advocate I worked for years and years supporting and representing #pwme and looking for better treatment.But just for me; I wanted

Sarah Richardson

nosdrahcirharas

#meawarenesshour It's Weds 8pm. The weekly echo chamber of preaching to the converted. @NICEComms please would someone read all the historical tweets #pwme have sent. We need to be heard.

LibertyFarmEmma

The rhetoric around furloughed workers is so radically different from that around disabled people. Imagine if the chancellor said 'noone wants to be on ESA, it's not their fault businesses

#meawarenesshour My intention is not to frighten anybody, but 10 years ago I got a virus and it left me disabled.If you have #COVID19 & experience debilitating fatigue afterwards, please

Hannah Davis 🦈

One of the most jarring and upsetting things I've learned as part of this #longcovid journey is the entire world of post-viral and post-infectious illness. One of these, a neuroimmune

Without wishing to subtweet anyone, I am seeing much discussion of #LongCovid & similarities (or not) with #MECFS. I can only speak of my lived experience with the latter &

As days get shorter, evenings longer, and the world in turmoil due to a pandemic, let me tell a sad and forgotten story. A tale of the early outbreaks of

It's #MEAwarenessHourME is a complex physiological malfunction. It's not something that a person can cure themselves from. It is unrelated to attitude.It doesn't matter how hard a person tries or

I remember @richardvallee referring to @MEcfs someplace as the catch-22 disease: whatever you do or say, you are f****d.• Some activity —> others assume capacity you don’t have • Not