#EhlersDanlosSyndrome

1/ At least 250,000 people with chronic illnesses like #MECFS, #Fibromyalgia, #POTS and #EhlersDanlosSyndrome are currently denied thorough investigation and effective health care in the UK. 2/ This number has

Nicole Lee Schroeder, PhD

I met with a nutritionist last weekend who asked what I do. I told her I was finishing up my PhD and the response was "wow you're so driven to

Rouha 😴😷🧬♿📚👩🏽‍🔬

Dear #EhlersDanlosSyndrome folks (researchers, clinicians, or patients) could someone find me a source for that persistent myth about painless dislocations (complete or partial).@Asher_Wolf @DrEReinhold @H2OhTwist @JCDemmler @LoveInYourTumm

I think the term *Hypermobile* Ehlers-Danlos Syndrome is entirely inadequate & superficial & leading to widespread misunderstanding & mistreatment of patients. It paints a picture of a benign condition—someone who’s

Overwhelmed MS4 🏳️‍⚧️

EDS and pregnancy. Wish the language weren't so gendered, but great article nonetheless. Summary for #MedTwitter to followhttps://twitter.com/hEDStogether/status/1380783292115529729 Pregnant or gestating EDS pts have: "increased r

Jun (author Heidi Cullinan)

Let's do a thread on Heidi using CBD/THC to manage her #hEDS. Setting: I live in Iowa/US, where cannabis for chronic pain just became a thing. My pain levels vary

LibertyFarmEmma

The rhetoric around furloughed workers is so radically different from that around disabled people. Imagine if the chancellor said 'noone wants to be on ESA, it's not their fault businesses

May is #EhlersDanlosSyndrome Awareness Month! Gonna spend a little time this month talking about some of the less well-known issues people with EDS deal with. It’s commonly known for being

Nicole Lee Schroeder, PhD

September is Pain Awareness Month. I've dealt with chronic pain my whole life. But it was not addressed, recognized, or respected until I was 19 and I got my #EhlersDanlosSyndrome

Things That I Wish People Considered About #EhlersDanlosSyndrome: A Thread. #neisvoid So, #EDS has officially come out of hibernation. October - February is when I experience, on average: more flare-ups,