Dear #EhlersDanlosSyndrome folks (researchers, clinicians, or patients) could someone find me a source for that persistent myth about painless dislocations (complete or partial).

@Asher_Wolf @DrEReinhold @H2OhTwist @JCDemmler @LoveInYourTummy @BluesteinLinda

Any one recall?

(gonna say: this doesn't mean folks don't have painless dislocations, but to make this a blanket statement FOR ALL FOLKS with EDS is highly problematic)

(personally will depend on the joint, my in question. pain perception of a dislocation ranges from *screaming make it stop* to just feeling..."Off" or "weak" until physio assesses range of movement or strength & helps me get the dang joint back into a cooperative state)

IMPORTANT NOTE: it has been suggested that "persistent myth" invalidates the experience of those who do indeed have painless dislocations, the expression "stereotype that interferes with care" is closer to what is intended. Your experiences are valid!!!

The time for a twitter edit button is serious overdue. -_-

(expanding to include folks with syndromic Hypermobility and/or connective tissue instability, I see you cousins).