#neisvoid Today on #MonroesBodyTalk:doctors who ignore factual information and well educated inferences from patients due to arrogance, ableism, mental health, and autism.

I was just dx w/ #Raynauds and possible #lupus, 1.5 yrs after my inference, here’s why it took that long.

•I have a #fibro dx. Once someone receives that dx, all symptoms are assumed related to such. Patients are often passed along and hushed when approaching other dx, tho fibro is very often a comorbidity.
•I have #schizoaffective and #psychosis. Dr.’s assume I am exaggeratory.

•I am #ActuallyAutistic. When I am spoken over, spoken down to, interrupted, and have aggression/frustration directed towards me (which is often the case if a patient disagrees/questions a Dr. ESP / Autism/ Mental health a few things happen.

1. I become anxious and stutter leading the Dr to assume I am unstable
2. Believe I am unable to know my own body bc I am not “behaving normal”
3. Think that I am not well enough to judge the wellness of my own body

This allows Dr’s an open invitation to control the conversation and not allow me to get the info/referral/dx I need. This also allows them to infer I am not capable of having my own information to contribute, and boosts their God complex thru the roof.

Once the ego is boosted, this ends any helpful form of communication we have.

•I have a complex variety of comorbidity dx, that are rare for my age, and the assumption they are my fault by Dr’s is highly prevalent. I am also on a multitude of meds.

This leads to a few things.
-I am a “dx seeker” or hypochondriac (no matter the documented evidence) usually assumed due to my schizoaffective dx

-I am a “drug seeker” tho if I didn’t have the dx I have and took the meds I’m on I’d be extremely ill, therefor canceling it out
-Bc of my image (tattoos piercings ect) there is an assumption I must have caused damage to my own body by “poor choices” bc schizo+tattoos=unstable

•I make very poor eye contact leading Dr to assume I am unsure of my opinions/info I’ve gathered and they think I am not confident when I am simply autistic and therefor disregard everything I say

•I fidget so that I can speak steadily and this leads to it being assumed I am panicky or in a “bad place” when I am usually fine just trying to converse in a healthy discourse about my needs

and finally
•Dr’s do not realize they are in a power situation. They control your entire life in their hands. They often don’t allow second opinions, and asking for a referral to a dif Dr is usually a nerve wracking experience bc it offends the doc and they may drop you.

This could lead to you being w/o the Dr u need until u get a new one which is often months away, a very dangerous situation for disabled folks.

See, I’ve been passed around for 2.5 years now. Within the past 5 months I’ve been dx w/ erythromelalgia, small fiber neuropathy, raynauds, and highly possible lupus.

My body has been nearly immobile this entire time.

I’ve seen the clinic a minimum of 70 times in 1.5 years.

Yet I’ve been denied pain meds, answers, and to be frank, any god damn respect this entire time. All bc I am ND and unless I bring my 70 yr old cis straight white male father with me I am no one, and not listened to by anyone.

If we are for #M4ALL, we need to push harder on the “ALL” aspect of it. People like me are left to suffer bc MH/autism education in the medical field is insanely lacking, and if we want everyone cared for, this means EVERYONE.

INCLUDING those w/ symptoms that make you uncomfortable, those who talk to themselves/fidget/yell/have panic attacks/paranoia/psychosis/hear voices, ect.

Everyone in this country needs medical care.

We don’t just need expansion,

We need massive reform.

@OdyO11 I saw your post about ableism in healthcare and thought you might like this tweet I wrote the other day.