#PwME

So yesterday it was #MEawarenessDay/#MillionsMissing. Some tweets were sent. Now #PEM. Just fired up my computer for #MEawarenessHour after a day necessarily spent mainly in darkness and notice that I

exceedhergrasp1

Alll righty. I'm going to try and address this. Each main point will be in caps to keep things organized... THREAD! (1/12) #mecfsconference #pwME https://twitter.com/pinkproletariat/status/1105675888220389380 (1) ARE #PWME REALLY NKC

James David Chapman

As an M.E patients of 35yrs and well-known patient advocate I worked for years and years supporting and representing #pwme and looking for better treatment.But just for me; I wanted

THREADhttps://twitter.com/twitchyspoonie/status/1310778552770392072 and @twitchyspoonie is right: although QoL ratings aren't infallible (what is?), they are SOMETHING. and #MECFS is near the top, charted by more than one source. right

exceedhergrasp1

We're asking #pwME (myalgic encephalomyelitis/chronic fatigue syndrome) to share their personal stories this #MillionsMissing. Here is mine. (Long THREAD) When I was in later childhood, my mom caught mono in

Jessica Diamond ♿ She/her

JessicaXDiamond

Things you can do to help people with ME, an #MEAwarenessHour thread. /1 1. Watch 'Unrest' by @jenbrea. It's on Netflix UK (included with subscription) and Amazon (have to pay.

Sarah Richardson

nosdrahcirharas

#meawarenesshour It's Weds 8pm. The weekly echo chamber of preaching to the converted. @NICEComms please would someone read all the historical tweets #pwme have sent. We need to be heard.

Hemmeli 🛌👩🏽‍🦽🐈🏳️‍🌈

#neisvoid I want to tell you about what GET did to me. Before GET I had medium ME. I was mostly home bound but I could take short walks, take

I remember @richardvallee referring to @MEcfs someplace as the catch-22 disease: whatever you do or say, you are f****d.• Some activity —> others assume capacity you don’t have • Not

Themos Kalafatis

(1/4) #MECFS is a multi-systemic disease where we are trying to put the pieces of a huge puzzle together. In the Network Analysis shown below Lysine plays a central role.

#memesforME Memes only #pwME will understand!!#ME #ME/CFS I’ll start: #memesforME #memesforME #memesforME

Dr Mark Guthridge

Thread:The 10 publications below provide scientific evidence that patients with #MECFS have #brain abnormalities in #neuroinflammation, #metabolism, #neurological connections and blood perfusion#pwME suffer from #chronicillness#pwME are #Si

#ME #MECFS #pwmeHow long have you been ill?Weeks, months, years, decades?#LongME #LongMECFS #LongMyalgicE I keep having to stop reading these and wipe the tears from my glasses. Thank you for

It's Not All About ME

Advice pls:I have a carer once a day due to #severeME and was early implementing strict #COVID19 hygiene as I'm high risk. So far carers have mainly been great, cautious,

exceedhergrasp1

We had the space to do the research on viral infection transitioning to chronic, neurological disease before #COVID19. When we've cleared the acute outbreaks, there will be millions still sick,

exceedhergrasp1

There definitely have been chronic, neurological issues associated with post-SARS, to the point that there is a "post-SARS syndrome" entity in the literature. A few of these, results of a