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Tilman Andris
TilmanAndris
So yesterday it was #MEawarenessDay/#MillionsMissing. Some tweets were sent. Now #PEM. Just fired up my computer for #MEawarenessHour after a day necessarily spent mainly in darkness and notice that I
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It'sME(Jaime)
exceedhergrasp1
Alll righty. I'm going to try and address this. Each main point will be in caps to keep things organized... THREAD! (1/12) #mecfsconference #pwME https://twitter.com/pinkproletariat/status/1105675888220389380 (1) ARE #PWME REALLY NKC
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James David Chapman
ahelluvabird
As an M.E patients of 35yrs and well-known patient advocate I worked for years and years supporting and representing #pwme and looking for better treatment.But just for me; I wanted
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tommy
tommyinboots
THREADhttps://twitter.com/twitchyspoonie/status/1310778552770392072 and @twitchyspoonie is right: although QoL ratings aren't infallible (what is?), they are SOMETHING. and #MECFS is near the top, charted by more than one source. right
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It'sME(Jaime)
exceedhergrasp1
We're asking #pwME (myalgic encephalomyelitis/chronic fatigue syndrome) to share their personal stories this #MillionsMissing. Here is mine. (Long THREAD) When I was in later childhood, my mom caught mono in
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Jessica Diamond ♿ She/her
JessicaXDiamond
Things you can do to help people with ME, an #MEAwarenessHour thread. /1 1. Watch 'Unrest' by @jenbrea. It's on Netflix UK (included with subscription) and Amazon (have to pay.
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Sarah Richardson
nosdrahcirharas
#meawarenesshour It's Weds 8pm. The weekly echo chamber of preaching to the converted. @NICEComms please would someone read all the historical tweets #pwme have sent. We need to be heard.
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Hemmeli 🛌👩🏽🦽🐈🏳️🌈
Hemmeli__
#neisvoid I want to tell you about what GET did to me. Before GET I had medium ME. I was mostly home bound but I could take short walks, take
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Tilman Andris
TilmanAndris
I remember @richardvallee referring to @MEcfs someplace as the catch-22 disease: whatever you do or say, you are f****d.• Some activity —> others assume capacity you don’t have • Not
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Themos Kalafatis
lifeanalytics
(1/4) #MECFS is a multi-systemic disease where we are trying to put the pieces of a huge puzzle together. In the Network Analysis shown below Lysine plays a central role.
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Dr Ben Marsh
bendymarsh
#memesforME Memes only #pwME will understand!!#ME #ME/CFS I’ll start: #memesforME #memesforME #memesforME
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Dr Mark Guthridge
Dr_M_Guthridge
Thread:The 10 publications below provide scientific evidence that patients with #MECFS have #brain abnormalities in #neuroinflammation, #metabolism, #neurological connections and blood perfusion#pwME suffer from #chronicillness#pwME are #Si
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Carole Bruce
CaroleBruce17
#ME #MECFS #pwmeHow long have you been ill?Weeks, months, years, decades?#LongME #LongMECFS #LongMyalgicE I keep having to stop reading these and wipe the tears from my glasses. Thank you for
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It's Not All About ME
Claire_Myfanwy
Advice pls:I have a carer once a day due to #severeME and was early implementing strict #COVID19 hygiene as I'm high risk. So far carers have mainly been great, cautious,
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It'sME(Jaime)
exceedhergrasp1
We had the space to do the research on viral infection transitioning to chronic, neurological disease before #COVID19. When we've cleared the acute outbreaks, there will be millions still sick,
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It'sME(Jaime)
exceedhergrasp1
There definitely have been chronic, neurological issues associated with post-SARS, to the point that there is a "post-SARS syndrome" entity in the literature. A few of these, results of a
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