#MYALGICE

It's Not All About ME

Advice pls:I have a carer once a day due to #severeME and was early implementing strict #COVID19 hygiene as I'm high risk. So far carers have mainly been great, cautious,

I remember @richardvallee referring to @MEcfs someplace as the catch-22 disease: whatever you do or say, you are f****d.• Some activity —> others assume capacity you don’t have • Not

Dr Mark Guthridge

1/ ThreadMyalgic Encephalomyelitis/Chronic Fatigue Syndrome #MECFSIs it really that bad?Trigger warnings: The studies below paint a very bleak picture#MyalgicE #SickNotWeak #pwME #MyalgicEncephalomyelitis #ChronicIllness #MedEd #MedTwitter #SickNotWe

ME/CFS IN CHILDREN - Our daughter (a thread)As some of you may know, our wonderful 8 year old daughter Hayley was diagnosed with ME (Myalgic Encephalomyelitis) just a few weeks

Paula Knight ✒️🎨 ♿

Megathread: 1 Trying to unpick reasons why people disengage from those with #chronicillness such as #ME My thoughts below. Taken a couple of months! Feel free to add #neisvoid #pwme

[Thread]Doctors with #longCOVIDI think many with #MyalgicEncephalomyelitis /#ChronicFatigueSyndrome may find the changed attitudes of interest. https://www.bma.org.uk/news-and-opinion/doctors-with-long-covid#longhaulers #longCOVID #PostCovi

exceedhergrasp1

Alll righty. I'm going to try and address this. Each main point will be in caps to keep things organized... THREAD! (1/12) #mecfsconference #pwME https://twitter.com/pinkproletariat/status/1105675888220389380 (1) ARE #PWME REALLY NKC

Dr Mark Guthridge

Thread:12 reasons that doctors disbelieve patients with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome #MECFS1. Doctors tended to see #pwME as having “certain personality traits"#SickNotWeak #MedEd #MedicalTwitter https://www.bm

Dr Mark Guthridge

18 myths & misconceptions of Post-Exertional Malaise #PEM in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome #MECFS#PEM (aka PENE, "flare" or “crash”) is seriously debilitating symptom caused by exercise#SickNotWeak #Si

Dr Mark Guthridge

Thread:The 10 publications below provide scientific evidence that patients with #MECFS have #brain abnormalities in #neuroinflammation, #metabolism, #neurological connections and blood perfusion#pwME suffer from #chronicillness#pwME are #Si