Today is #WorldOvarianCancerDay. I am sharing my story to raise awareness about this disease. I do it with a grimace. This wasn’t supposed to be my story.
From Jan - May 2021, I had symptoms. Bloating, lower back pain, slight increase in need to urinate, fatigue. I was misdiagnosed, despite having had 2 transvaginal ultrasounds.
I was 42. They thought endometriosis. No one thought #OvarianCancer. My Uncle, an #obygyn, suggested I get a blood test to rule out cancer. My CA 125 level was 925 (normal <35). That same day I contacted a gyn/onc.
Two weeks later a laparotomy. They diagnosed stage 3C, high-grade serous ovarian cancer. I’ve been on treatment ever since, living on borrowed time, extending my life with medication.
I am mad as hell that I was misdiagnosed for so long. And mad as hell that there’s been minimal progress in the treatment of ovarian cancer.