It finally happened. It took two years, 14 different doctors, countless phone calls with medical friends, and endless hours of internet research. But, I finally have been officially diagnosed with ME/CFS. Even armed with a medical degree, it was still an incredibly long and (1)

frustrating process. I never felt like my providers actually understood the depths of my anguish and despair. My doctor's were always certain they new the cause of my symptoms, until a test returned that didn't support their diagnosis. I was continually amazed at the lack (2)

Lack of awareness about ME/CFS. I would get blank stares when I suggested it as a diagnosis. Through this process, I've lost my identity as a surgeon and athlete. Like most ME/CFS patients, I have had to come to an acceptance of my disease, and reinvent myself. All of this (3

has made me realize how difficult this is for the vast majority of ME/CFS patients, many who go years without a diagnosis and have to battle a dysfunctional health care system. But, I have found a community on Twitter, one I only recently discovered. And I am hopeful, because 4

I do believe that science is on the cusp of diagnosis and treatment. I would also say, for those looking for a patient, compassionate physician, that Dr. Nathan Holladay in Salt Lake was amazing. He spent 8!! hours over 2 days in our appointment. He is completely up to date on

every scientific article and treatment option. I would thoroughly recommend him for those who live in West/Midwest. (End)