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I don't think it's possible to understate how much healthy people don't comprehend how exhausting chronic pain and chronic illness are.
I have IBS. Grumpy butt disease. It's actually pretty damn painful during flares.
Imagine stabbing gut cramps, sudden and intense nausea, combined with an insistent painful urge to go.
That's a flare for me. It doesn't go away after using bathroom.
Imagine stabbing gut cramps, sudden and intense nausea, combined with an insistent painful urge to go.
That's a flare for me. It doesn't go away after using bathroom.
Now I've been lucky. I finally found a med combo that along with an active job, keeps my flares pretty minimal, once a week couple weeks maybe.
It's just enough to feel normal. Then out of nowhere,
.
If I can't get to a bathroom, it gets worse.
It's just enough to feel normal. Then out of nowhere,
. If I can't get to a bathroom, it gets worse.
If I have to suppress it because there is no bathroom nearby, it's absolutely exhausting. Wipes me out. Whatever else I was doing that day gets canceled. I'm stuck on the toilet and then I'm going to bed because I'm tired.
That's nothing to what some of my friends deal with. EDS, fibro, chronic pain caused by old injuries. I don't know how they cope. I'm not surprised when doing dishes is all they can manage sometimes.
I wish I knew a way for healthy people to get this. I know I'm not really adding anything new. I just don't know how much we can push back against ableism if the majority of people out there cannot comprehend the lived experience of people with disabilities.
