[covid vaccine]

I know people are concerned about "vaccine hesitancy" and the pandemic

But let me just say this:
if I found out scientists knew someone died as a result of the J&J vaccine and they didn't tell us because of paternalistic BS

That would be Very Bad
[covid vaccine]

I get that the messaging is unclear and the mainstream media messaging in particular is not being done very well

This definitely could have been done better

But I think that based on currently available info, pausing J&J vaccines is good
[covid vaccine]

I mean, remember last year when the official info from the CDC was "masks don't help prevent the spread of COVID"

But that was actually just so they could make sure hospitals maybe had enough PPE?

...yeah, that's the paternalistic BS I mean
[covid vaccine]

I know that the US educational system is not generally great at teaching scientific literacy and nuance

But I still think it would ultimately do more damage to withhold the rare potential for fatalities from the J&J vaccine
[covid vaccine]

Personally, I would much rather hear something like, "someone died and we want to find out more and update training for medical professionals before restarting this vaccine"

Than just. Not do that.
[covid vaccine, ableism]

Plus, as someone with a bunch of weird supposedly-rare chronic medical conditions

I'm really not feeling great about all the tweets I'm seeing that are like "this is only fatal in people with rare diseases"

😬🙃
[covid vaccine]

Also, just to point out a thing about "rare" medical conditions:

It often takes years to get a diagnosis, if you ever do

So there are probably people who don't even know that they have a risk factor for complications
[covid vaccine]

I get that maybe we're not used to having doctors say stuff like "we don't know enough about this, but here's what we know so far"

But uh I personally would prefer that over just. Not giving me all the information.
[covid vaccine]

Especially because a lot of the "vaccine hesitancy" I've seen is among chronically ill people with "rare" medical conditions

Because we don't know how the vaccine will affect people with our disabled bodyminds

So: please give me all the information, thank you
[covid vaccine]

This is just to say:

Informed consent is still important, even during a pandemic
[covid vaccine]

Also like, just to be clear: I love vaccines

My grandma worked in a pediatric fever ward for children with many diseases that are uncommon now due to vaccinations

My mom has witnessed smallpox epidemics

I love vaccines
[covid vaccine]

But also, when I asked my doctors about the potential risks for me getting vaccinated with my assortment of chronic illnesses

The response was basically:
We know covid might kill you, so the safer bet is to get vaccinated đŸ€·
[covid vaccine]

And I was okay getting vaccinated with this particular set of known risks

But since that calculus has now shifted, you'd better believe I think we deserve to know https://twitter.com/UntoNuggan/status/1382019087170174976?s=19
[covid vaccine]

Also, if you're someone dealing with a mast cell disorder and want one person's anecdata about getting the Pfizer vaccines, here is a thread just for you https://twitter.com/UntoNuggan/status/1373308630188105728?s=19
[covid vaccine]

Also, Ramadan Mubarak to those who celebrate! You might appreciate this guide from the British Islamic Medical Association about getting vaccinated during Ramadan

(If someone has the energy to caption the images, I'd appreciate that) https://twitter.com/BritishIMA/status/1381559313857122309?s=19
[covid vaccine]

Also, while we're discussing bad science communication

I'm once again tapping the "trans and intersex people exist" sign https://twitter.com/UntoNuggan/status/1381979083920248833?s=19
[covid vaccine]

Alex also has a really important perspective on "rare" clotting disorders and navigating medical care https://twitter.com/alexhaagaard/status/1381948056636166148?s=19
[covid vaccine]

Another reason why I think informed consent is so important wrt the vaccine

Is that I know a lot of chronically ill people with weird reactions to meds / Immune System Problems (tm)

Had been opting for J&J because it was one and done
[covid vaccine]

Basically, if you know you're prone to weird side effects, it makes sense to try to minimize the number of doses you get

The clotting side effect may change that risk calculation for some of us https://twitter.com/UntoNuggan/status/1382029269640097795?s=19
[covid vaccine]

Also I just want to say:

Yes, it's frustrating that hormonal birth control side effects include risk of clotting and that's considered acceptable risk

But maybe we should change that, not dismiss clotting as a risk for other medications and vaccines
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