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To anyone who thinks #IdiopathicHypersomnia "is actually something else" + "can be cured with "exercise, sleep hygiene, vitamins, yoga, essential oils, or PoSItiVE ThINkinG" firstly: fuck you
Secondly: Have a list of things I had to go through to get my diagnosis - A THREAD. /1
Secondly: Have a list of things I had to go through to get my diagnosis - A THREAD. /1
-22 years of trying all the things non-sleepies think will "cure tiredness"
-dozens of blood tests in case of not having all the vitamins in me and shit, done for YEARS
-lost 20kg to prove it was not my weight causing my tiredness /2
-dozens of blood tests in case of not having all the vitamins in me and shit, done for YEARS
-lost 20kg to prove it was not my weight causing my tiredness /2
-mental health tests to prove this isn't depression, anxiety, bipolar, etc. Almost every year since I was 8
-ONE YEAR OR TESTING and waiting WHEN I WAS 22 which included:
-MRI, epilepsy test, 2 overnight sleep tests, 2 sleep latency tests, SPINAL FLUID TEST of agony /3
-ONE YEAR OR TESTING and waiting WHEN I WAS 22 which included:
-MRI, epilepsy test, 2 overnight sleep tests, 2 sleep latency tests, SPINAL FLUID TEST of agony /3
-trying to convince dozens of doctors that I was not insane - even with yearly proof being called liar and lazy despite doing well in school
-people around me doubting me on every step until I LITERALLY STARTED COLLAPSING PUBLICLY AND ENDANGERING OTHER PEOPLE
To name SOME /4
-people around me doubting me on every step until I LITERALLY STARTED COLLAPSING PUBLICLY AND ENDANGERING OTHER PEOPLE
To name SOME /4
So when someone says they have been diagnosed with NEUROLOGICAL sleep disorder like #IH, shut up with the "advice". The amount of shit we go through is...beyond your non-sleepy understanding. Our tired is nothing like yours. Try compassion and empathy instead. /5
