ever heard of Ankylosing Spondylitis (AS) ? you must’ve wonder, apa kebendanya AS ni? tak pernah dengar pun before this 🤨 follow this thread for more info ✨
sebelum tu, let me introduce myself. my name is Iman 🙌🏻 AS fighter since the day i was diagnosed which was a few years ago. i’ve known a few people with AS in Malaysia & harapnya dengan thread ni, i dapat cari ramai lagi AS fighter dekat luar sana ✨
okay, AS ni actually is a rare type of arthritis that causes pain and stiffness in your spine. nama lain dia kita panggil Bechterew disease atau spondyloarthritis. it usually starts in your lower back. It can spread up to your neck or damage joints in other parts of your body.
as you can see, there’s a difference antara normal vertebrae and someone with AS punya vertebrae. sebabtu i tend to bongkok sikit kalau perasan. Sadly, there’s no cure for AS, medication given cuma untuk ease the symptoms yang kita rasa :(
AS in often starts in sacroiliac joints, di mana spine kita connect dengan pelvis . It can affect places where your tendons and ligaments attach to bones. dia even boleh cause your vertebrae to fuse together.
-Pain that’s worse in the morning or after sitting for a long time
-A rigid spine that curves forward
-Tiredness
-Swelling in your joints
-Trouble taking deep breaths

if you’re experiencing these symptoms, you might have AS. but it can mimic other disease jugak as below
AS ni tough to spot since ramai orang ada back pain, which is its main symptom. diagnosis is even trickier for women sbb this condition is more common in men.

Also,tiada single test yang boleh confirm AS. Doctor cuma rely on your symptoms, a physical exam, and blood tests saja
Apa akan jadi kalau AS ni is left untreated?

If left untreated, chronic inflammation can ultimately cause the vertebrae in your spine to fuse together. You may have decreased range of motion when bending, twisting, or turning. You may also have greater, more frequent back pain.
‘Folded man’ stands up straight after 28 years following surgery that br... via @YouTube

in this video, you can see a man in China yang ada AS, but left untreated sampai his upper body folded onto his lower limb. that’s how AS will get you 😢
In some people macam me, AS ni worsen as I get older . As for the lucky one pula, it’s stop progressing as they age.

oh lupa ! AS ni is both an autoimmune type of arthritis and a chronic inflammatory disease. dia macam sle/lupus if you’re familiar with it.
cuma bezanya AS ni more kepada back, spine and si joint, meanwhile AS ni systemic. ramai juga jumpa yang first was diagnosed with AS, then ada lupus juga.
okay next, AS has no known specific cause, even genetic factors seem to be involved. Orang yang ada gene called HLA-B27 kebanyakan at greater risk of developing AS. However, some people with this gene saja yang developed this condition. ramai juga don’t have the gene tapi ada AS
treatment for AS ni tak banyak. NSAIDs for the pain,DMARD (disease-modifying antirheumatic drugs) to limit the tissue damage from inflammation, steroids and biologics, which i ambil secukinumab , benda ni kena cucuk sendiri sebulan sekali, or depending on your prescription
dekat malaysia, i still tak jumpa lagi support group untuk AS, i would like to start one. Bila i tengok Wani Ardy tubuhkan support group for MRKH, i jadi semangat nak cari malaysians suffered from AS so that we can support each other
group luar negara ada, but it is not the same ! kalau malaysian based we can do a meet up share cerita masing masing, even together create awareness tentang Ankylosing Spondylitis which is a rare disease in Malaysia.
if you have any questions regarding ankylosing spondylitis, boleh saja tanya i ! i’m more than happy to answer all of your questions 🤗
oh ya , if you have a friend living with AS or you’re living with AS, boleh dm i ya ! ☺️
You can follow @imnmnsr_.
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