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Saturday: Allergy reaction
Sunday: Hit the Wall of Fatigue
Monday: Post-nasal drip swells left tonsil/aura migraine
Tuesday: Tonsil stones join in
Wednesday: Major acid reflux with double vision
Worked out the trigger pattern and put solutions in place.
Today I’m...
Sunday: Hit the Wall of Fatigue
Monday: Post-nasal drip swells left tonsil/aura migraine
Tuesday: Tonsil stones join in
Wednesday: Major acid reflux with double vision
Worked out the trigger pattern and put solutions in place.
Today I’m...
Patterns: The on contact/airborne IgE allergy reactions primed my mast cells, which means once they blow they are hypersensitive for days afterwards. The clue that all these separate symptoms were mast cell driven lay in antihistamines/removing triggers bringing them all down.
Allergy reaction left me with post-nasal drip, as in allergic rhinitis. My left nostril was blocked, this affected my hearing on that side and swelled my left tonsil. Post-nasal drip is a well documented reason behind tonsils swelling > https://www.enthealth.org/conditions/post-nasal-drip/
Mast cells also reside in the brain. Mast cells are implicated in brain injuries, neuropsychiatric disorders, stress, neuroinflammation, and neurodegeneration. > https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5733004/
Re my aura migraine: Progression in migraine: Role of mast cells and pro-inflammatory and anti-inflammatory cytokines > https://www.sciencedirect.com/science/article/abs/pii/S0014299918307064
On the topic of persistently enlarged tonsils, known as Tonsillar hypertrophy > Tonsillar cytokine expression between patients with tonsillar hypertrophy and recurrent tonsillitis > https://ctajournal.biomedcentral.com/articles/10.1186/s13601-018-0205-z
Mast cells in gastrointestinal disorders > https://scholar.google.co.uk/scholar?start=10&q=mast+cells+gastrointestinal+tract&hl=en&as_sdt=0,5&as_vis=1#d=gs_qabs&u=%23p%3DWkpudD7XI1MJ
Acid reflux with double vision? There’s a condition known as Eye reflux: an ocular extraesophageal manifestation of gastric reflux > https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6133879/
Another thing that helps me to calm the acid reflux was my Homedics massager. I worked this out years ago. Research is just catching up > https://www.medicalnewstoday.com/articles/325271
When you have a mast cell driven disorder the phrase ‘work out your triggers’ involves far more than working out which ingredient/event set off the initial symptoms. You have to understand what it was within that initial trigger that then set off a cascade of new symptoms.
This means trying to find the patterns hidden beneath all the complexity. Basically you have to think like a strategist. Interestingly nearly everyone who has found solutions to their own mast cell disorder/chronic illness presentation thinks this way.
As for me hitting the Wall of Fatigue > 2018: Mast Cell Activation May Underlie 'Chronic Fatigue Syndrome' > https://www.medscape.com/viewarticle/893858
Extreme fatigue is a feature of my other condition - hypermobile Ehlers-Danlos Syndrome - a connective tissue disorder, which makes sense once you understand that mast cells reside IN connective tissue all over the body.
This is what having a mast cell disorder with a connective tissue disorder feels like for me. My body is a car and my mast cells are explosive devices. Every time they go off my car is torn apart and I have to work out how to rebuild it.
This is where understanding how nutrition works at a molecular level can be helpful to reduce symptoms (rebuild the car). Dr Heidi Collins has a guide to strategic thinking re nutrition >
Due to the nature of my IgE allergies I only have one safe medication, which is why working out my trigger patterns has been key to managing my symptoms. Saturday’s flare involved a new trigger and now I know that pattern I can avoid that cascade in future.
In the end what sounded like a long list of different problems in my first post all came back to mast cell inflammation which was fixed by understanding the trigger, antihistamine and a massage! In the past I’d have been given numerous meds for that list.
My heat-stable allergen tends to be in the excipients, which meant even medication kept the reactive loop going. Antibiotics can also deplete good bacteria in the microbiome and increase the bad bacteria, which means the good bacteria population needs to be rebuilt each time.
The medical wonderland of mast cell research has given me a new appreciation of how the human body works and the many ways in which its stability can be challenged by both internal and external environments. (End of thread)
