https://abs.twimg.com/emoji/v2/... draggable="false" alt="🧵" title="Thread" aria-label="Emoji: Thread">SWC Group Leader Athena Akrami was among the first people to notice that her COVID symptoms were not going away, a phenomenon now recognised as ‘Long-COVID’ that is receiving attention in the global press. https://www.theatlantic.com/health/archive/2020/08/long-haulers-covid-19-recognition-support-groups-symptoms/615382/">https://www.theatlantic.com/health/ar...

Ever the researcher, @AthenaAkrami teamed up with fellow Long COVID patients to form a patient-led research group on COVID-19. Their first report analyses what COVID recovery looks like based on the experiences of 640 COVID patients. #Highlights_from_the_Survey_Analysis">https://patientresearchcovid19.com/research/report-1/ #Highlights_from_the_Survey_Analysis">https://patientresearchcovid19.com/research/...

But we don& #39;t fully understand Long COVID yet, and the work continues! Athena is now the principal investigator on a second Long COVID survey sponsored by @UCL in collaboration with researchers at @OHSUNews and @nyphospital/ @WeillCornell that will shape our understanding of COVID.

If you think you’ve experienced COVID symptoms (even if you& #39;ve already recovered) please take part! The survey is available in English, Italian, Spanish, Portuguese, French, Dutch, and Russian. Learn more and spread the word: https://patientresearchcovid19.com/survey2/ ">https://patientresearchcovid19.com/survey2/&...