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SWC Group Leader Athena Akrami was among the first people to notice that her COVID symptoms were not going away, a phenomenon now recognised as âLong-COVIDâ that is receiving attention in the global press. https://www.theatlantic.com/health/archive/2020/08/long-haulers-covid-19-recognition-support-groups-symptoms/615382/
Ever the researcher, @AthenaAkrami teamed up with fellow Long COVID patients to form a patient-led research group on COVID-19. Their first report analyses what COVID recovery looks like based on the experiences of 640 COVID patients. https://patientresearchcovid19.com/research/report-1/#Highlights_from_the_Survey_Analysis
But we don't fully understand Long COVID yet, and the work continues! Athena is now the principal investigator on a second Long COVID survey sponsored by @UCL in collaboration with researchers at @OHSUNews and @nyphospital/ @WeillCornell that will shape our understanding of COVID.
If you think youâve experienced COVID symptoms (even if you've already recovered) please take part! The survey is available in English, Italian, Spanish, Portuguese, French, Dutch, and Russian. Learn more and spread the word: https://patientresearchcovid19.com/survey2/
