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I haven’t talked about my health directly in months- though it colors all of my posts really
I’ve been sick since early March
I now have six different Drs & still no treatment plan
VOTE NOW- honestly you don’t know if you’ll be sick next week
1/
I’ve been sick since early March
I now have six different Drs & still no treatment plan
VOTE NOW- honestly you don’t know if you’ll be sick next week
1/
At this point I can barely shuffle to & from the bathroom
I can’t make food for myself
I use a nebulizer to try & breathe enough to keep my oxygen safe
I cough to incontinence all day, every day
I have periods of significant confusion, processing issues, trouble finding words
I can’t make food for myself
I use a nebulizer to try & breathe enough to keep my oxygen safe
I cough to incontinence all day, every day
I have periods of significant confusion, processing issues, trouble finding words
I have inconsistent, but often, stomach issues
Pain & aching in both joints & muscles, and increasingly some nerve pain
My temp is usually 99-100, just enough to be chilled or warm & always headachy
My world is minuscule
3/
Pain & aching in both joints & muscles, and increasingly some nerve pain
My temp is usually 99-100, just enough to be chilled or warm & always headachy
My world is minuscule
3/
March 4:
I had my first symptoms- dry scratchy cough that felt like allergies, but wouldn’t go away with sips of water
March 12:
First requested a test- was told there weren’t any & it wasn’t needed (despite my work in elder care)
March 17:
First test. It was lost, no results
I had my first symptoms- dry scratchy cough that felt like allergies, but wouldn’t go away with sips of water
March 12:
First requested a test- was told there weren’t any & it wasn’t needed (despite my work in elder care)
March 17:
First test. It was lost, no results
March 24:
First test that got a result- 20 DAYS after symptoms began (we now know this was almost certainly too late for a nasal swab test)
Negative
March, April, May- in and out of ER, urgent care & finally Pulmonology
No pneumonia, no positive test- but I was seriously ill
First test that got a result- 20 DAYS after symptoms began (we now know this was almost certainly too late for a nasal swab test)
Negative
March, April, May- in and out of ER, urgent care & finally Pulmonology
No pneumonia, no positive test- but I was seriously ill
I don’t remember lots of that time
We lived every day with a hospital bag packed
I’m only 49 years old, but I made out my Advanced Directives
Because covid had showed negative, Drs assumed it must be something else & began testing- ALOT
We lived every day with a hospital bag packed
I’m only 49 years old, but I made out my Advanced Directives
Because covid had showed negative, Drs assumed it must be something else & began testing- ALOT
I don’t have Valley Fever
I don’t have mold
I don’t have whooping cough (though I did have some antibodies)
I don’t have Lupus
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I don’t have pneumonia
I don’t have Lyme disease
I’ve had every symptom of Covid19 since March
And I’m still seriously ill
I don’t have mold
I don’t have whooping cough (though I did have some antibodies)
I don’t have Lupus
I don’t have pneumonia
I don’t have Lyme disease
I’ve had every symptom of Covid19 since March
And I’m still seriously ill
CTs of chest & belly finally show some ground glass & “tree-in-bud” formations in my lungs- suggestive of a secondary resistant infection
My gall bladder is distended- may need to come out
A bronchoscopy with biopsy is Friday, a gall bladder scan is Monday- and more following
My gall bladder is distended- may need to come out
A bronchoscopy with biopsy is Friday, a gall bladder scan is Monday- and more following
I now have Drs in:
Pulmonology
Infectious Disease
Rheumatology
OBGYN (also messed up)
Neurology
Gastroenterology
Again, I’m 49.
Going into this I had well controlled asthma, and an autoimmune disease that had been in remission for five years (it’s not anymore)
Pulmonology
Infectious Disease
Rheumatology
OBGYN (also messed up)
Neurology
Gastroenterology
Again, I’m 49.
Going into this I had well controlled asthma, and an autoimmune disease that had been in remission for five years (it’s not anymore)
It’s been a STRUGGLE to find Drs, to get in to see them, and to get care
I live in a medical desert it seems
There are no female OBGYNs within an hour of me- and no female Drs in almost any other specialty
As a survivor, that’s especially hard for me
I live in a medical desert it seems
There are no female OBGYNs within an hour of me- and no female Drs in almost any other specialty
As a survivor, that’s especially hard for me
Insurance has been its own nightmare
When this began I had a wonderful job I loved, working with women I enjoyed, helping families I cared about
My illness went on so long my position had to be filled
No more insurance- with one days notice
When this began I had a wonderful job I loved, working with women I enjoyed, helping families I cared about
My illness went on so long my position had to be filled
No more insurance- with one days notice
We struggled to get by
It took four months to get any pandemic unemployment
In July I was finally able to get a job at hone doing customer service by phone- and after 90 days would have insurance again
Oct 1st, I finally had insurance again- and had lined up the appointments
It took four months to get any pandemic unemployment
In July I was finally able to get a job at hone doing customer service by phone- and after 90 days would have insurance again
Oct 1st, I finally had insurance again- and had lined up the appointments
Now we’re finally beginning to get answers & find the specific infection that’s added to my prolonged illness
The rest of what’s wrong with me I hope there will be answers for, or at least the beginning of recovery
The rest of what’s wrong with me I hope there will be answers for, or at least the beginning of recovery
I didn’t write all this personal, medical info down because I want pity- though kind thoughts & healing energy are always appreciated
I wrote this because so many people still think this is no big deal
They think masks have to do with your politics- instead of our survival
I wrote this because so many people still think this is no big deal
They think masks have to do with your politics- instead of our survival
You can’t see or know who’s high risk
The love of my life still has to go to work, do our no-contact grocery pickups, get meds from the pharmacy, and get me to my appointments
He lives in fear of getting sick- or making me sicker
Your mask helps us both
The love of my life still has to go to work, do our no-contact grocery pickups, get meds from the pharmacy, and get me to my appointments
He lives in fear of getting sick- or making me sicker
Your mask helps us both
A low percentage of children getting sick or dying won’t be a comfort if it’s your child
People at elevated risk are TONS of people
I don’t ever want our freedoms infringed upon- that’s not what this is
I don’t want more of us to die
People at elevated risk are TONS of people
I don’t ever want our freedoms infringed upon- that’s not what this is
I don’t want more of us to die
Our grandparents made sacrifices to work together & win
They blacked out the entire coastlines to avoid Japanese subs
That wouldn’t have worked if some people refused because they had a right to
They worked together for the common good- to STAY SAFE
This is what we need now
They blacked out the entire coastlines to avoid Japanese subs
That wouldn’t have worked if some people refused because they had a right to
They worked together for the common good- to STAY SAFE
This is what we need now
Nothing about my experience this year is unique
I’m blessed that we still have a place to live
We have enough food
We have each other
I can NOW access medical care
I know, and feel deeply grateful for, how fortunate I am
But it shouldn’t be that way, for any of us
I’m blessed that we still have a place to live
We have enough food
We have each other
I can NOW access medical care
I know, and feel deeply grateful for, how fortunate I am
But it shouldn’t be that way, for any of us
I’ll conclude with this:
#VoteLikeYourLifeDependsOnItBecauseItDoes
And please, please, please #WearAMaskhttps://abs.twimg.com/hashflags... draggable="false" alt="">
You may never know who all you save by doing sohttps://abs.twimg.com/emoji/v2/... draggable="false" alt="💜" title="Violettes Herz" aria-label="Emoji: Violettes Herz">
#VoteLikeYourLifeDependsOnItBecauseItDoes
And please, please, please #WearAMask
You may never know who all you save by doing so
