Thread by @SLGInvolvement, There’s lots of evidence that #involvement in #research studies adds value. But [...]

Shared Learning Group on Involvement

SLGInvolvement

There’s lots of evidence that #involvement in #research studies adds value. But does #PPI in research add value for charities? Our @slginvolvement project ( https://bit.ly/3nda2O2 ) found 10 ways this happens. A thread. (1/12)

@DerekCStewart @SDenegri @Drakesyard @JeremyTaylorNB

#involvement informs #research strategy & priority setting – e.g. through @lindalliance priority setting partnerships. This gives added credibility & accountability & prioritises areas that are most important to patients. (2/12)

@Katherine_JLA @sally_crowe @bloodcancer_uk

Many charities have #PPI in funding decisions. #Involvement ensures more relevant decisions are made. It ensures that the #research funded is what is important to patients. (3/12)

@AMRC @PancreaticCanUK @ChrisMResearch

#involvement aids transparency and accountability for charity funded research. Here’s an example from @mssociety (4/12)

@jrobertson478

#Involvement allows for increased recognition of a charity. It boosts their reputation for funding research that’s relevant to patients. (5/12)

@IMI_JU @ParkinsonsUK @_nratcliffe @annie_amjad

#Involvement helps to influence other organisations. Priorities identified by patients through @lindalliance have helped charities to influence other #research funders. By supporting #PPI in #research, charities can influence other researchers to involve. (6/12)

@BowelResearch

#Involvement in research helps charities to fundraise. @DUK_research is a great example of this. (7/12)

@DiabetesUK

#Involvement in research helps empower individuals and builds skills and confidence. Here’s an example from @tenovuscancer (8/12).

#Involvement in research leads to more involvement – more people get involved and those who get involved do more. (9/12)

@CR_UK

Involvement enthuses staff members. Staff who support #PPI in #research say it brings them a sense of purpose and reminds them what’s important to patients and their communities. (10/12)

@mariecurieuk @LJElliot @AMRC

#Involvement helps shape policy and media messaging – especially when times are tough – e.g. during #Covid19 (11/12)

@TheStrokeAssoc @LauraJPiercy

Involvement of patients in research in charities is vital. But it doesn’t happen on its own - it needs staff to support it. Please keep supporting research in charities so we can keep doing this. #researchatrisk #charitytuesday

Full report: https://bit.ly/3nda2O2 (12/12)
@AMRC

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