There’s lots of evidence that #involvement in #research studies adds value. But does #PPI in research add value for charities? Our @slginvolvement project ( https://bit.ly/3nda2O2 )">https://bit.ly/3nda2O2&q... found 10 ways this happens. A thread. (1/12)
@DerekCStewart @SDenegri @Drakesyard @JeremyTaylorNB
@DerekCStewart @SDenegri @Drakesyard @JeremyTaylorNB
#involvement informs #research strategy & priority setting – e.g. through @lindalliance priority setting partnerships. This gives added credibility & accountability & prioritises areas that are most important to patients. (2/12)
@Katherine_JLA @sally_crowe @bloodcancer_uk
@Katherine_JLA @sally_crowe @bloodcancer_uk
Many charities have #PPI in funding decisions. #Involvement ensures more relevant decisions are made. It ensures that the #research funded is what is important to patients. (3/12)
@AMRC @PancreaticCanUK @ChrisMResearch
@AMRC @PancreaticCanUK @ChrisMResearch
#involvement aids transparency and accountability for charity funded research. Here’s an example from @mssociety (4/12)
@jrobertson478
@jrobertson478
#Involvement allows for increased recognition of a charity. It boosts their reputation for funding research that’s relevant to patients. (5/12)
@IMI_JU @ParkinsonsUK @_nratcliffe @annie_amjad
@IMI_JU @ParkinsonsUK @_nratcliffe @annie_amjad
#Involvement helps to influence other organisations. Priorities identified by patients through @lindalliance have helped charities to influence other #research funders. By supporting #PPI in #research, charities can influence other researchers to involve. (6/12)
@BowelResearch
@BowelResearch
#Involvement in research helps charities to fundraise. @DUK_research is a great example of this. (7/12)
@DiabetesUK
@DiabetesUK
#Involvement in research helps empower individuals and builds skills and confidence. Here’s an example from @tenovuscancer (8/12).
#Involvement in research leads to more involvement – more people get involved and those who get involved do more. (9/12)
@CR_UK
@CR_UK
Involvement enthuses staff members. Staff who support #PPI in #research say it brings them a sense of purpose and reminds them what’s important to patients and their communities. (10/12)
@mariecurieuk @LJElliot @AMRC
@mariecurieuk @LJElliot @AMRC
#Involvement helps shape policy and media messaging – especially when times are tough – e.g. during #Covid19 (11/12)
@TheStrokeAssoc @LauraJPiercy
@TheStrokeAssoc @LauraJPiercy
Involvement of patients in research in charities is vital. But it doesn’t happen on its own - it needs staff to support it. Please keep supporting research in charities so we can keep doing this. #researchatrisk #charitytuesday
Full report: https://bit.ly/3nda2O2 ">https://bit.ly/3nda2O2&q... (12/12)
@AMRC
Full report: https://bit.ly/3nda2O2 ">https://bit.ly/3nda2O2&q... (12/12)
@AMRC