My disability is genetic. I'm struggling with the Nobel Prize in chemistry going to scientists working on gene editing. I have conflicting, ever-evolving views about passing on my disability but there are much broader social implications to this award. 1/3 https://www.npr.org/2020/10/07/921043046/2-female-scientists-awarded-nobel-prize-in-chemistry-for-genome-editing-research

The Nobel Committee lauded CRISPR for moving us closer to "the dream of curing inherited diseases." While there are arguably some benefits to gene editing it feels like the real "dream" they're working toward is a world without beautiful, diverse disabilities. And that hurts. 2/3

I've written on the subject of "fixing" and "curing" disabled humans, so I'm sharing some of those pieces here to elaborate on my views, both personal and broader. 3/3

1) https://wordsiwheelby.com/2013/08/complexities-of-cures/

2) https://wordsiwheelby.com/2014/02/genetic-ethics-dilemma/

3) https://www.vice.com/en/article/d73947/fix-discriminatory-attitudes-and-broken-sidewalks-not-humans