does this say what i think it does? https://twitter.com/HannahntheWolf/status/1310375146083897345

i'm going to say some stuff. i am speaking for MYSELF.

i have a complex, severe, violent, multi-systemic illness. there exists no level of care, treatment, and accessibility that would un-ruin my life.

ableism and other oppressions contribute to the lack of treatment options for my illness after all these decades, but it's the current reality.

i am in many, many types of physical pain AND other severe and violent physical symptoms that (while they may cause pain) i would not classify as pain if we were classifying. sudden projectile borching, for example.

just as most people need to learn or acquire some whole language AND some phonics in learning to read, many people need the social model AND the medical model of disability. in different combinations; at different moments; applied differently to different aspects of our lives.

"inclusion, community, and pain management" are critical. ones that would truly un-ruin my life don't exist.

is the OP's point that those are what i should long for, rather than longing to someday not be sick? is she talking about which direction we should yearn in?

i am VERY disability positive.

the sentence "Chronically ill desire for a nondisabled body is ableist" is gutting.

it's guttingly unfair. it's narrow. and it's not true.

abled status quo culture is incredibly oppressive with its exclusive support of the medical model of disability.

but saying that we're ableist ourselves unless we use ONLY the social model of disability is ALSO oppressive.

"Chronically ill desire for a nondisabled body is ableist" makes it sound as if the main thing i (and maybe others) yearn for is the IDEA of a non-disabled body, the archetype of that.

that's not what i yearn for.

i don't give a fuck about that trope. i'd be happy to be trope disabled and ID disabled and truly-disabled in various ways forever.

but i'm sick as fuck; it makes my life torment; and access, community, and the best care -- while they'd help immensely -- would not fix the core.

the torment of chronic illness is not ALL societal oppression and lack of access, care, community, or a good economic standard of living.

some of the torment is the illness itself.

it's this! amy said it better: https://twitter.com/amyhoy/status/1310756034470752257

the original twetter has locked down, so here is the tweet my thread is about. thank you @swampflora for screenshotting! (i'll type it out just below, for screenreaders.) https://twitter.com/swampflora/status/1310776512782766082

"Chronically ill desire for a nondisabled body is ableist.

Our desire for inclusion, community, pain management--those are valid.

Using the nondisabled body as our goal (as the medical model does) continues to write the disabled body as outside the bounds of desirability."