Serious tweet thread:
#PMDD is Pre Menstrual Dysphoric Disorder. It can affect 1 in 20 afab people during their menstruating years. It can start at any time and tends to worsen over time. Events such as pregnancy, birth, miscarriage and perimenipause can also worsen it.
1/?
Symptoms of #PMDD
Mood/emotional changes (e.g., mood swings, feeling suddenly sad or tearful, or increased sensitivity to rejection)

Irritability, anger, or increased interpersonal conflicts

Depressed mood, feelings of hopelessness, feeling worthless or guilty

2/?
Anxiety, tension, or feelings of being keyed up or on edge

Decreased interest in usual activities (e.g., work, school, friends, hobbies)

Difficulty concentrating, focusing, or thinking; brain fog

Tiredness or low-energy

#PMDD

3/?
Changes in appetite, food cravings, or overeating

Hypersomnia (excessive sleepiness) or insomnia (trouble falling or staying asleep)

Feeling overwhelmed or out of control

Physical symptoms such as breast tenderness or swelling, joint or muscle pain, bloating or weight gain
#PMDD facts:
Patient. s wait and average of 12 yrs for diagnosis.
People with #PMDD are more as risk for suicidal behaviours.
85% of individuals with #PMDD experience thoughts of suicide.
30% of people with #PMDD have attempted suicide compared to 10% of people with depression
Approx 50% of people with #PMDD report losing an intimate partner relationship due to #PMDD

98% feel #PMDD puts a significant strain on their current intimate partner relationship/s.

97% report that #PMDD puts significant strain on their family relationships.
42% of those with children report problems with parenting due to #PMDD.

10.5% report being completely unable during #PMDD

16.8% report having lost a job to #PMDD
Research continues but has shown differences in the genes that process sex hormones. In most people and increase in
allopregnanolone makes people feel calmer. In people with #PMDD it causes agitation, anxiety and negative mood changes.

It is not just feeling a bit grumpy.
My personal story is that mine started in early teens & has progressively worsened, including sudden and significant worsening at time. There isn't a treatment. Antidepressants can reduce symptoms.
The onset is up to two weeks before a period - for me, it's normally 8 days before
It gradually eases a few days after bleeding stops.

It's onset is sudden and feels catastrophic. It takes away my sense of self and reduces me to a hurting emotional wreck. I get scared. I have had many times when I don't know how I have survived the day.
It is as though a self-destruct button has been hit.

On top of the storm of what it does to me, I have the fear of ruining relationships during those times. It feels like trying to rebuild from the destruction of a tsunami each month and with that, there are always some things
that can't be put back or something I have said or done will have changed things forever.

As well as fearing what the menopause will do to me, I am desperate for it to give relief from this. #PMDD
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