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Parkinson patients support organization - Ethiopia
PPSOE is a charity organization that was founded by ወ/ሮ ክብራ ከበደ who also happens to a Parkinson's disease patient, in 2011 E.C. PPSOE is a nonprofit able organization with a main (1/n)
purpose of creating awareness for the society.
Parkinson's disease is a disorder of the central nervous system that affects movement, often including tremors.
It starts with brain cells (neurons) which control movements. The brain cells produce a substance called (2/n)
Dopamine. The disease sets in when these neurons die which leads to the decrease of dopamine in the brain. This lack of dopamine is thought to result symptoms that affect the way we move.
The disease is mostly developed around the age of 60. That doesn't mean younger (3/n)
generation is not or will not be affected. It just so happens to be rare at early age. Many Parkinson patients live 10-20 years after diagnosis. Parkinson is not a fatal disease. It does not kill in its own, but the symptoms lead to problems that do.
Parkinson has five (4/n)
stages. It can occur at rest with just a tremble of the hands, limbs or postural fatigue, dizziness, poor balance may also have mood swings, anxiety apathy. It can also show symptoms facially with stifness of the jaw or reduced facial expressions. (5/n)
At the 5th stage patients start to experience severe posture issues in their back, neck, and hips. They will require a wheelchair and may be bedridden. In end-stage of Parkinson's disease also experienced non motor symptoms. (6/n)
The disease doesn't kill.
Men are more likely to be affected more than women.
Mostly over the age 60.
50-80% pts. experience dementia
Its cure hasn't been found yet. The only effective medication that is available is Levodopa, its a natural chemical that (7/n)
pass to brain and converts into dopamine.
Sooooo our organization has been actively working since 2011 and also 2012. (mostly this year). The main job of our members is to create awareness. We had about 300 people that joined our group but if I'm not mistaken around 100 of (8/n)
us or less are active. The challenging part of this job is around visitation days. We have about 65-70 PD patients just in AA that require help with movements and such likes. What we do is we divided our members to the locations they're close by to visit the patients. Since (9/n)
the disease affects muscular movements, we ought to help them move around the house, sit and talk with them, do physiotherapy. Since its a disease that affects the brain some pts may lose consciousness and question who we are or yell at us or throw things at you. (10/n)
We just have to bare with them in their difficult times. Buttttt at this moment due to covid-19 our organization is currently not working. Since everything we do requires human contact. Once this is all over we will be back in running and helping these patients in any (11/n)
possible way we can.
We are doing this because we live in a county where more than 80% of the society doesn't know what this disease is about. We tend to believe that its God's anger that resulted this and consider it as a curse or so.... we want to change that. (12/n)
Its just a disease just like others.
Its nothing more.
Its not transmittable.
It economically drains.
Its socially destructive. (13/n)
Soooo if anyone is interested in joining our campaign, I'll leave our telegram contact below (its a bit slow rn). We will be back in running when the pandemic is over. If there's any questions my dm is always open (14/n)
Contact numbers:-
011- 8885402
0916825331
0912230774
0911701362
postbox :- 31 code 1032
Email address :- [email protected]
Website:- http://www.parkinsonethiopia.org 
CBE 1000002963462
Dashn bank kera 0039787085005 https://t.me/joinchat/GbJrnREjJXNL-de9CMDWAA
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