Read on Twitter
Six weeks ago, I heard there were kids getting Covid and not getting better. Like the adults we've been hearing about, they were long-haulers. At the time, I couldn't find a single article about it. So I decided to do it myself #LongCovidKids #longhaulers https://undark.org/2020/09/02/kids-covid-19-long-haulers/
The stories I heard from some of these parents broke my heart. Their children have been sick for months, they don't know when--or if--they'll fully recover.
#LongCovidKids #LongCovid #longhaulers https://undark.org/2020/09/02/kids-covid-19-long-haulers/
#LongCovidKids #LongCovid #longhaulers https://undark.org/2020/09/02/kids-covid-19-long-haulers/
As one mom worried, "We could have a catastrophic level of chronic illness among our children that may impact them forever."
#LongCovidKids #LongCovid #Longhauler https://undark.org/2020/09/02/kids-covid-19-long-haulers/
#LongCovidKids #LongCovid #Longhauler https://undark.org/2020/09/02/kids-covid-19-long-haulers/
These children are battered with a vast, unusual array of symptoms, like adults are. The youngest, littlest long-haul kiddo was (at the time I interviewed her mom) just 8 months old.
#LongCovidKids #LongCovid #LongHaulers https://undark.org/2020/09/02/kids-covid-19-long-haulers/
#LongCovidKids #LongCovid #LongHaulers https://undark.org/2020/09/02/kids-covid-19-long-haulers/
I hope we see more attention paid to the 17 & younger crowd; I hope the long-haul kids are tracked and studied. How many are out there? @CDCgov @NIH @AmerAcadPeds @PIDSociety @WHO @ASlavitt @JasonSalemi @gregggonsalves @GeoRebekah #LongCovidKids #LongCovid https://undark.org/2020/09/02/kids-covid-19-long-haulers/
When I reached out to @CenterRes to ask if he knew of anyone studying long-haul in children, he said no, but asked me more about what I was reporting on. When I told him, he said "Oh my God, we should try to capture this." They mobilized and created this:
https://redcap.is.depaul.edu/surveys/?s=AARRAR9JTX&fbclid=IwAR0FdVQDcJosBDtjOgHBjnPV884T8aTL_5uQFqstHlBZAsksXQfagvJCDrw
https://redcap.is.depaul.edu/surveys/?s=AARRAR9JTX&fbclid=IwAR0FdVQDcJosBDtjOgHBjnPV884T8aTL_5uQFqstHlBZAsksXQfagvJCDrw
Epidemiologist with @COVKIDProject @JanelleMMenard said, without better data on these #LongCovidKids, "It's like trying to be a pilot flying at night with no instrumentation.....If you don't have solid surveillance data, how can you make good decisions?" https://undark.org/2020/09/02/kids-covid-19-long-haulers/
Microbiologist @microbeminded2 said "Parents should know that every well-studied bacterial or viral pathogen has a chronic syndrome associated with it," while cautioning we simply don't know yet whether the long-haulers will become life-longers. #LongCovid https://undark.org/2020/09/02/kids-covid-19-long-haulers/
Thank you so much to @ahandvanish @fi_lowenstein for helping connect me with parents of #LongCovidKids, to @wudanyan for recommending @undarkmag to me, and most especially to the stressed and scared parents who told me their stories. #LongCovid #LongHauler https://undark.org/2020/09/02/kids-covid-19-long-haulers/
