Congratulations to French #patientassociation @Renalooo for your article in #BMJ @bmj_latest on #Covid19 and chronic #kidney disease #CKD: It is time to listen to #patientexperience - https://go.shr.lc/31yxtJ0  Some highlights:

"patients with chronic kidney disease face many challenges. During covid-19 morbidity and mortality rates from covid-19 are high (19.6% in kidney recipients infected with SARS-Cov-2 and 19.1% in patients on dialysis)"

2030 patients with a renal condition, living in all French regions, including overseas territories, answered questions on social and medical status, perception of risk , their behavior.

Only 1/3 of patients had had any contact with nephrologist during 2-month lockdown, 1/4 respondents on renal transplant waiting list had not been informed of suspension of transplantation.

When adult kidney transplantation was resumed, some hospitals resumed services and others did not, and none of the patient associations representing CKD were involved in the decision of when and how transplantation would begin again.

Delayed treatment is a crucial issue that needs to be explained, particularly where treatment is urgent, for example, the creation of a shunt or a kidney transplantation.

"Closer interaction and cooperation between patients associations and health professionals hold the key to better communication in all contexts particularly in the light of the current challenges being presented by covid-19"

@Renalooo and volunteers stepped up to the plate, writing dozens of informational articles, answering patient questions, one by one, and doing the survey. It is very moving indeed. I hope that they will receive the help they need and deserve. #patientsknowbest #hcsmeufr #Hcsm