CW: ableism, chronic pain
We urgently need your help. #NICE is changing its #NHS guidelines on which meds and treatments are available for those with #ChronicPain and #ChronicIllness, which can affect up to 1 in 4 of us.
Thread for info and action. http://tiny.cc/righttolife 

These guidelines set the tone, not just for your GP, but for the entire #NHS. This isn’t something we should ‘grin and bear’; it affects our entire lives. We can barely manage our pain in a lottery system depending on individual #healthcare professionals to understand our pain.

Chronic pain affects everyone of every age and background. There’s no one fix for those with #ChronicPain, including people with epilepsy, migraines, cancer, endometriosis and more. CBT, antidepressants and exercise don’t help manage all pain. It’s impossible.

CW: racism, ableism, classism, misogyny
Race, gender, disability, class and others mean you’re told to ‘just get on with it’ or that you’re exaggerating. For people with Black African and Caribbean heritage and mental health needs, will we give treatment? Or incarceration?

So we say this: @NICEComms, don’t cause us more pain. Yours painfully, the chronic pain experienced.
Sign the petition, write to MPs, NICE, and newspapers. Our #ChronicPain isn’t hidden shame. #spoonie #fibro #PCOS #EDS #CancerAwareness #ChronicIllness
http://tiny.cc/righttolife 

You can also contact @NICEComms directly via [email protected]. Let them know why this guideline change is damaging with fatal consequences.