Some of us have been vocal about living with chronic illness but a lot of u offer us unsolicited medical advice. Like I dont also have google?? And actual doctors? Like I havent tried all the things. Don’t u think I have done EVERYTHING to get better?? It’s my LIFE.

I just paid off $10,000 in medical debt.

So many of u act like it isnt as bad for us cause we dont look *sick* to u. I literally have people be like wow u have to take such good care of your body, i wish i had an autoimmune disorder, the fuck?????

You have no idea what my friends and I go through to still exist in this industry with a chronic illness. No fucking fairy godmother blessed me by being here if anything many of us feel we are being punished by living with chronic illness. It feels like a punishment

But larger picture, why do I have to spill my soul and trauma and list off my RESUME of diagnoses for you to treat me like a human??
I have to CONSTANTLY talk about my trauma on here so yall will show me any compassion or else I’m just some woman who has it easy in your eyes.

Do you know how they treat woc in doctors offices? Do you know how many doctors I have switched from? And $10k is LOW for medical debt.
You know what y’all tell me on here?
“At least you’re pretty”
Fuck u.
“Why didnt they say anything”
Cause of yall

I created a chronic illness group for my friends and I in the industry There are over 100 of us in it.

So that we could talk about this without yall pitying us (you do this a lot), offering advice we didn’t ask for, or judging us and our capabilities

Years ago when I was scarily poor I did a medical fundraiser when I was trying to do all my tests to figure out why i was having heart problems, why my hair was falling out, why I had twitches.
I am privileged now to have the money to care for myself. So many do not have this

And in many ways I am privileged that I’ve managed to get my Lyme disease and hashimotos somewhat in control and that i don’t “look sick” to y’all. That is a privilege.
But yes many of us are spending thousands and fighting battles u will never kno.

And I feel for my community that is too scared, alone, and poor to get the help they need. Cause I was there. And the ones who will be fighting for a diagnosis for years while doctors dismiss them.

And finally, no I don’t care about your aunt who takes a pill for her lyme or hashis or whatever the fuck and it’s no big deal for her. The idea that all of our bodies and chemistry is the same is ignorant. Like Covid, every body reacts differently to illness

Sorry one final thing: on top of this, I have been SO honest with y’all about suicidal depression, my attempts, my past eating disorder, my debilitating OCD, because u really treat public figures like we are not human.
I am your punching bag

I just want to make my art.