Oh, and looking at my feed I want to make one thing clear:

The fact that I'm white and American, owes more to my surviving than anything else. If I was in some countries, my health crisis would've killed me dead, if I'd made it that far.
A black woman, a visibly disabled woman, any of those and I'd likely have been murdered already, if not by the criminal elements I had to interact with, then by cops.

No amount of bullshit for being the wrong religion, or the wrong shape, or the wrong gender, is as strong.
With that in mind, I still will say that the terminally ill are one of the last groups that most people will be prejudiced against quite happily, and tell you their prejudice 'isn't the same.'
They'll tell you we shouldn't have leases, or pets, or netflix memberships, ffs.
The terminally ill are treated as being of bad character if we make plans more than 6 months in the future, but most of us live a couple years post diagnosis. We get shit for living too long, or if a new treatment makes us get a new schedule.
there are death groupies, who will try to do everything for you, but then when you have the nerve to stay alive, will whisper that 'maybe you aren't as sick as you say.' If you go on a trip, but then don't die as soon as you're back, people will say you are gaming the system.
The media's habit of not revealing a celebrity is sick until right before they die has taught some people that if you linger you're lying.
Also, if you spend your retirement $ and stick around you're 'not planning right' but if you don't spend it you 'needlessly suffer.'
Most people with rare diseases, even rare fatal diseases, might go through dozens of diagnoses in their dying life. Mostly they are fine tuning. You're diagnosed with a disease family, then maybe a disease, then maybe a form of it.
With each of these classifications, someone will decide you 'lied' when you said you had the other thing. Meanwhile, with each diagnosis your family thinks maybe it's not fatal.
Usually, you die on schedule. The name of what kills you doesn't matter.
We've thought about getting a rescue dog. We find ourselves in a position where we could help one. For most adoptive organizations, my terminal disease rules me out as a possible adoptor. It doesn't matter that I have a better than even chance of outliving a pet-
well meaning people will script long reasons why the terminally ill should not be allowed to adopt a rescue pet.
They don't realize this is discrimination, because to them "it's different." They can't get leases because 'what if they die in my property?'
Every person who pens these things about what they will allow the dying to participate in is participating in discrimination. And if the terminally ill want to sue, they have to choose if they want to spend what could be the rest of their lives fighting in court.
Anyone could die, by accident or murder or surprise, but the terminally ill usually have a will, someone who 'gets' their pets, even a plan for what to do with their body. The person who dies without warning will have none of these. Do we ask them to provide them?
So, it's the last prejudice many people will ever see, and generally their view is that people won't live long enough to suffer from the prejudice. So it's okay.
The terminally ill, as a group, usually live >5 years post diagnosis.
And with that, I'm out.
You can follow @labgrrl.
Tip: mention @twtextapp on a Twitter thread with the keyword “unroll” to get a link to it.

Latest Threads Unrolled: