Hello po @Elites2X @GianAnnie @JaDine__NATION @jadinethoughts ok lng po pa help ako pa spread nito.

Please take time to read (not JD related)

Hello good morning! Our darling Sabrina Alexis is prediagnosed with Tyrosinemia Type 1. That's why we are looking for courier+++

na maka-ship sa blood sample and urine to UP Manila for confirmatory testing. This is a genetic disorder and she is the 5th baby patient who was screened with this disorder via expanded Newborn Screening. Her condition is the most severe among the 3 types of Tyrosinemia. +++

This condition is characterized by disruptions in the process of breaking down the amino acid tyrosine, a building block of most PROTEINS. If untreated, it can lead to serious problems. This is heriditary and her doctor is the only geneticist in the whole Visayas Region, +++

who is Dr. Cavan. Thanks to Doc Ralph John Tion Noval for initially checking Sab. And also to Doc Rachelle Lubay for checking her online too. Both of them confirmed that Doc Cavan is the only one here in Visayas. Lisud kaayo if walay doctor ari sa Cebu kay mobiyahi +++

jud mi ug lain lugar. This is very challenging for us. I know most of you are curious ani sakita and what the signs and symtpoms are. God is very merciful and He truly loves Sabrina kay wala jud naabtan ug grabe na ang complications sa Renal System (kidney). +++

This disease will affect liver too. And thank God ok ra ang liver sa bata. Though some of her laboratory results were not good but we are positive na Sabrina will fight for her life. Pasalamat kaayo mi ni Doc Cavan for being transparent and kamaayo mo explain sa tanan +++

namo confusions. She is very helpful. She gave us non protein milk which costs 2500 pesos. Breastmilk is avoided for now since the breastmilk has tyrosines simbako ug magrabihan. +++

As of the moment, the medical team is focused on the treatment and prevention of complications which obviously has affected her Kidney already.
I am humbly asking for your fervent prayers for. Sabrina to win this fight. We cannot do this alone.+++

This disease is a very rare condition. Sabrina will be the 5th confirmed patient (in the whole Philippines )of this genetic disorder once fully confirmed sa confirmatory testing soon. +++

We were also advised to look for Neutra-phus which is unfortunately available ra sa UAE and USA. Friends, I am knocking on your hearts to please check if naa mo makit-an diha ani nga tambal for maintenance nasad para d maapektuhan iya bones. I am humbly asking for your help. +++